... If I'm 21 years old, will I die young due to this illness. My 21 year old daughter was diagnosed with Lupus a couple of months ago, she is very depressed because she has a 4 year child and she believes she will not live long to see him grow!! how true is this. please I am a very concerned mother, as she's always saying no matter what I will die young, she doesn't like to be reminded that she needs to change her life style. A Desperate Mom needs an answer!!! Thank You!
Systemic Lupus Erythematosus - How dangerous is Lupus at a young age, and is this disease curable.?
- 18 Aug 2013 by jazzmar102
- 14 November 2013
- systemic lupus erythematosus
She needs to talk to someone who treats people with illnesses. It can't be cured, but there is treatment. She needs to see a rheumatologst. People live for years with it when its treated. A diagnosis of lupus doesn't mean she's going to die tomorrow or anytime soon. She's missing out on her child if she's worried about the future. A dr who treats lupus would be able to treat her and tell her what the future may hold. My cousin was diagnosed at 19. She lived to marry, have a child and see her grandchildren. When she died it wasn't from anything connected to lupus.
In a word, no. She doesn't need to worry. Lupus is very treatable and can go into remission. A lot has to do with the type of Lupus and degree of her ailments . I was diagnosed after I went into kidney failure. No real symptoms just the kidneys. Since then, I am still able to work full time, exercise, and look after my family (3 boys). I do suffer from joint problems, and fatigue but having a positive outlook on life and just continuing with daily activities to the best of your ability will help. Try and cheer up, do lots of research and listen to your body. Rest when you need to and try and avoid becoming depressed. See if there is a support group In your area that you can go to.
Best of luck and you can always be assured that someone on this board wlll be there to help you.
I have Lupus also. I now have a negative ANA count and have it in remission. I cut out all genetically modified foods, vitamins, etc. He also had a food allergy blood test run. i cut out all the foods I never knew I was allergic to. it is amazing how much better I feel. There is no reason for her to give up. I would suggest a counselor for the depression and an open minded doctor. I began going to a naturopath who put me on vitamins and herbs based on my body's needs. What a difference. Please ask her to look into these things that work for me before she throws in the towel. There are apps for phones that can scan for ingredients. Saves a lot of time reading all the labels! It will take life style changes no matter what if she wants to feel better, at least to be there for her daughter. Good luck! Eat no GMOs and go organic!
I have lupus also. I was diagnosed at 25. Started having symptoms much earlier it just took awhile for the dr to find out what was going on with me. I too thought I was going to die young. 7 years later I'm still here. I have good days and bad days she just has to learn her limits. She will defiantly have to make life style changes. I worked a full time job working a mandatory 50 hours a week until last year when I was diagnosed with cancer. But now that I have beaten cancer I will be soon returning back to work. She will have good and bad days but it will only help her learn her limits!! Good luck to you and your daughter! She will make it to see her son grow up. Just have faith!!
Hi..i was diagnosed with lupus one year back..i was diagnosed with hemolytic anemia and RA first..i was having so much of pain for two years before getting diagnosed... i also thought the same way but i accepted the fact..i thought that i will die in around five years..when i joined this group my mentality changed ... tell ur daughter to join any support group and talk to the members who have the same disease..tell her to be positive..pray..care for her health and always be happy..now i dont have any pain or any other symptoms as i keep myself happy..engage in some leisure activity... and a do full time job...
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