... with a herniated disc somewhere around the T-4/T-5 area. My first Neuro guy got angry at me because I had gone to a spine & back specialist (I'd been seeing the first guy for seizures after a car accident/head injury) and was told that the syrinx had been there since I was a child. He said all my pain was musculature. He COMPLETELY disregarded the C-2&3 fx I'd had in 1969 which was multiple fractures then a laminectomy that only partially took. I'm now having lots of pain in the T-4/6 region. I was just told that I'm leaking spinal cord fluid by my new neuro guy. I don't know what to do. Frankly, I'm quite nervous. I've never been seen by a neurosurgeon. I'd take any sugestions, comments, recommendations, whatever! At this point I'm getting to the point where I find it difficult to hold my head up at times. My head is too heavy!!!
Hi shannonallboys - if the diagnosis of Syringomelia is indeed accurate, you really have no other option than to get to a neurosurgeon to be evaluated. You can, and likely should, get a second opinion to make sure the correct decision is made. From what I googled about this diagnosis, it's nothing to mess around with - you can be permanently disabled from the pressure on your spinal cord. Seek out a neurosurgeon that has great reviews, go to a large hospital, and make sure your surgeon has done hundreds of these - successfully. The Internet is your friend in finding a good neurosurgeon - go to only the best. Please take care - ElizaJane
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