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When Sibling Has Epilepsy, Kids Worry

Posted 4 hours 14 minutes ago by Drugs.com

MONDAY, Dec. 5, 2016 – Brothers and sisters of children with epilepsy tend to worry and feel protective toward them, a new study finds. "When a child has a chronic disease, it impacts the family and we wanted to learn how it affects siblings of children with epilepsy," said lead researcher Barbara Kroner. She's a senior epidemiologist at RTI International, a nonprofit research institute headquartered in North Carolina. "We found very few disapproving feelings among siblings toward their brothers and sisters with epilepsy. The negative feelings they had were more internal, showing they were sad for or worried about them," she explained in a news release from the American Epilepsy Society. For the study, researchers surveyed 61 parents of a child with epilepsy. They asked about the disorder's effect on the sibling closest in age, who had to be at least 4 years old. The study found that ... Read more

Related support groups: Klonopin, Seizures, Clonazepam, Ativan, Valium, Lorazepam, Epilepsy, Diazepam, Seizure Prevention, Seizure Prophylaxis, Klonopin Wafer, Onfi, West Syndrome, Clobazam, Diastat, Valrelease, Diastat AcuDial, Zetran, Diastat Pediatric, Dizac

Study Sheds Light on Safety of Driving With Epilepsy

Posted 10 hours ago by Drugs.com

SUNDAY, Dec. 4, 2016 – People with epilepsy who experienced longer seizures during a simulated driving test may face an increased risk for crashes while on the road, a new study suggests. About 75 percent of people with epilepsy use medication to control their seizures and are able to drive. The remainder of patients typically keep a journal of seizures, noting how long they last, and doctors use that information to determine whether patients can drive safely, the study authors explained. The new study included 16 people with epilepsy who used a driving simulator for between one to 10 hours, most for an average of three to four hours. In total, the patients had 20 seizures, seven of which resulted in "crashes." The longer the seizure, the greater the chance of a "crash." Seizures lasted an average of 75 seconds among patients who crashed and 30 seconds among those who didn't crash. The ... Read more

Related support groups: Seizures, Topamax, Epilepsy, Keppra, Tegretol, Topiramate, Dilantin, Qsymia, Carbamazepine, Seizure Prevention, Levetiracetam, Phenytoin, Tegretol XR, Valproic Acid, Epitol, Seizure Prophylaxis, Keppra XR, Carbatrol, Depakene, West Syndrome

Newer Epilepsy Drugs May Be Safer During Pregnancy

Posted 1 Sep 2016 by Drugs.com

THURSDAY, Sept. 1, 2016 – Women who take the new epilepsy drugs levetiracetam and topiramate during pregnancy don't run the risk of harming their infant's mental development, British researchers report. But the commonly prescribed anti-seizure drug valproate was linked with lower IQs in children, especially when taken at higher doses, researchers say. "The treatment of epilepsy in women who are considering a pregnancy or are pregnant involves optimizing the health of the mother as well as keeping the risk to the fetus as low as possible," said lead researcher Rebecca Bromley, a research fellow at the Institute for Human Development at the University of Manchester. In the study, children exposed to levetiracetam (Keppra) or topiramate (Topamax) in the womb did not differ from children not exposed to these drugs. And they had better outcomes than the children exposed to valproate ... Read more

Related support groups: Birth Control, Contraception, Emergency Contraception, Seizures, Topamax, Epilepsy, Keppra, Topiramate, Qsymia, Postcoital Contraception, Seizure Prevention, Levetiracetam, Vitamin/Mineral Supplementation during Pregnancy/Lactation, Keppra XR, Seizure Prophylaxis, West Syndrome, Status Epilepticus, Lennox-Gastaut Syndrome, Trokendi XR, Topamax Sprinkle

Young People With Epilepsy Struggle on Many Fronts

Posted 10 Aug 2016 by Drugs.com

WEDNESDAY, Aug. 10, 2016 – Children and young adults with epilepsy face an array of psychological, physical and social challenges, a new analysis reveals. Australian researchers reviewed 43 studies that included a total of more than 950 children, teens and young adults, and delved into their experiences with the seizure disorder. "Children with epilepsy feel vulnerable from a physical and a social perspective," said study author Deepak Gill. He is a pediatric neurologist who heads the Children's Comprehensive Epilepsy Service at the Children's Hospital of Westmead, in New South Wales. "One theme that came out was the loss of bodily control, and that the person during a seizure can feel physically overpowered, with worry that the seizures would lead to serious injury," Gill added. Those with epilepsy also reported feeling inferior and discriminated against. Some of the comments from the ... Read more

Related support groups: Seizures, Epilepsy, Seizure Prevention, Seizure Prophylaxis, West Syndrome, Status Epilepticus, Lennox-Gastaut Syndrome

Even Controlled, Epilepsy May Still Cause Problems for Kids

Posted 31 Mar 2016 by Drugs.com

THURSDAY, March 31, 2016 – Even when their seizures are well-controlled, children with epilepsy can still have learning and behavioral disorders that lead to social and educational problems when they're young adults, a new study finds. "Frequency and intensity of seizures remain important predictors of how well a child does into adulthood. But, somewhat to our surprise we also found seizures are by no means the sole influencers of social and educational outcomes among adults with childhood epilepsy," said study lead author Anne Berg. Berg is a scientist with the Ann and Robert H. Lurie Children's Hospital of Chicago, and professor of pediatrics and neurology at Northwestern University Feinberg School of Medicine. The research included 241 children and teens in Connecticut who were diagnosed with uncomplicated epilepsy from 1993 to 1997. They were followed for an average of 12 years. ... Read more

Related support groups: Seizures, Epilepsy, Seizure Prevention, Seizure Prophylaxis, West Syndrome, Status Epilepticus, Lennox-Gastaut Syndrome

Wearable Devices Aim to Monitor Epileptic Seizures

Posted 8 Dec 2015 by Drugs.com

TUESDAY, Dec. 8, 2015 – Wearable devices aimed at tracking seizures in epilepsy patients are being developed, researchers report. Three such devices – a patch, an arm band system and wrist-worn monitors – were reviewed in three separate studies and presented this week at an American Epilepsy Society meeting in Philadelphia. They do not yet have U.S. Food and Drug Administration approval as medical devices for recording seizures. However, their success could be very helpful to neurologists treating patients with epilepsy, said Dr. Clifford Segil, a neurologist at Providence Saint John's Health Center in Santa Monica, Calif. Segil was not involved in the research. "Wearable technology being used by neurologists is not as up-to-date as technology being used by cardiologists in 2015," Segil said. "Seizures are a very diverse group of disorders, which are not easily managed, and work ... Read more

Related support groups: Seizures, Epilepsy, Seizure Prevention, Seizure Prophylaxis, West Syndrome, Diagnosis and Investigation, Status Epilepticus, Lennox-Gastaut Syndrome, Seizure Prophylaxis During or Following Neurosurgery

Marijuana Chemical Shows Promise for Hard-to-Treat Epilepsy in Kids

Posted 7 Dec 2015 by Drugs.com

MONDAY, Dec. 7, 2015 – Evidence is mounting that a marijuana-derived oil might benefit some children with epilepsy whose seizures aren't controlled by approved medications, two new studies show. Cannabidiol (CBD) significantly reduced seizures in as many as half of children with epilepsy, researchers planned to report Monday at the American Epilepsy Society's annual meeting, in Philadelphia. But experts say these positive findings may have been influenced by a "placebo effect." All participants in these studies knew they were taking the oil, which could have affected reports of its effectiveness. "We know that our placebo rates can be as high as 30 percent, and sometimes higher," said Dr. Amy Brooks-Kayal, American Epilepsy Society president, who wasn't involved in the studies. "We don't know the real effect of the cannabidiol, and we won't until we complete the studies that are ... Read more

Related support groups: Seizures, Epilepsy, Seizure Prevention, Cannabis, Seizure Prophylaxis, West Syndrome, Status Epilepticus, Lennox-Gastaut Syndrome

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Acthar, Acth, Acthar Gel, HP, corticotropin