Join the 'Trigeminal Neuralgia' group to help and get support from people like you.
Trigeminal Neuralgia Questions
Related terms: Tic Doloureux, TN Pain, Trigeminal
We found 117 questions associated with the 'Trigeminal Neuralgia' topic.
Posted 18 Nov 2017 by • 3 answers
I was diagnosed with TJ N about seven years ago. I tried the usual, tegretol, neurontin, and Gabapentin before finally having GammaKnife Surgery (actually radiation) performed. Now, six years later and I am experiencing intense pain once more. Today, my Dr. Started me on Baclofen - 5mg three times ...
Posted 27 Jun 2018 by • 0 answers
Posted 15 Mar 2018 by • 1 answer
Posted 27 Jan 2018 by • 1 answer
I know there are a few of different combos of drugs that can help manage TN but my MD and I have yet to find the right one. I was diagnosed with TN about 4 years ago after I had a Right Middle Fossa Craniotomy to remove Cholesteatoma for the ninth time. I was originally diagnosed with Cholesteatoma ...
Posted 7 Jan 2018 by • 1 answer
I've heard of a lot of different things to relieve pain such as the surgeries. Can anyone recommend any surgeries that have had total success. I have TN on the left and right. My pain management just wants to threw pills down my throat and I don't want that. I don't want to supress ...
Posted 29 Dec 2017 by • 0 answers
My ear and jaw pain started to return after 2-3 days. My sinus/cheek bone pain returned after 2 weeks. At 2 1/2 weeks swallowing meat/bread pain returned. I have been in agony for 3 years. The doctor's staff describes him as being conservative with his treatments. The trigeminal block ...
Posted 28 Sep 2017 by • 3 answers
As a result of the removal of a menengioma at the base of the Pons, the accumulation of scar tissue resting on the trigeminal nerve is causing severe and constant pain and numbness on one side of the mouth. Four years exactly after the surgery the discomfort continues but thankfully the tumor has ...
Posted 19 Nov 2013 by • 1 answer
Hi all... with your TN-does anyone have the sensation of your teeth vibrating... or your tongue vibrating when touched to the roof of your mouth? I do and my Neurologist always looks at me like, "well... isn't that interesting' and says that they don't have any other patients ...
Posted 21 Aug 2017 by • 0 answers
I've had TN1 for about a year but I thought it was a tooth went to the dentist teeth are perfect. So, it has come for a couple days then goes away for weeks. Friday I was getting ready to drink a Route 44 Cherry Limeade from Sonic and had the worst episode ever, in my mind I was wondering what ...
Posted 9 Jun 2017 by • 1 answer
Posted 7 May 2017 by • 2 answers
It only ocurrs in the morning or near the time my next dose is needed. I've read that numbness was usually seen in people that were on the drug for a month Just wondering if this is wat to early to be having this side effect
Posted 21 May 2017 by • 0 answers
Posted 2 May 2017 by • 0 answers
... Which has?
I have been off gabapentin 800 x3 for 3 days big mistake.. am being treated for trigeminal neralgia?
Posted 29 Mar 2017 by • 1 answer
... is it safe to restart my med.and if so full strengh???
Posted 27 Aug 2016 by • 1 answer
My husband has Trigeminal Neuralgia on his lower lip. When it flares the pain is around his lower left lip and radiates on the left side of his face. The pain is very intense! Poor guy... I feel so sorry for anyone who suffers with this pain. I've had Shingles (twice) this year on the back of ...