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Primary Immunodeficiency Syndrome Questions
We found 13 questions associated with the 'Primary Immunodeficiency Syndrome' topic.
Posted 8 Jun 2013 by • 3 answers
Gammagard S/D - Insurance company is making an issue of the fact that it is found to work by the FDA
Posted 5 Jan 2011 by • 3 answers
... calling it a specialty drug and asking that it have extra costs. (Company as yet doesn't know how much the costs will be) Not only is this different than the insurance coverage that I had before but it is threatening for my well being. The FDA in countering my questions assured me that ...
Posted 17 Jun 2013 by • 2 answers
... Dallas, TX. I am looking for a doctor who has experience with this type of experience. Thank you
Posted 7 Oct 2013 by • 3 answers
Were you newly diagnosed or switched? Do you administer it yourself? Are you considering switching again? If yes, why?
Posted 8 Aug 2011 by • 1 answer
In March switched from Vivaglobin to Hizentra for hypogammaglobulinemia related to multiple myeloma. No problems with Vivaglobin, but +/- once a month I form these nodules that last a couple of months and then go away. Two weeks ago switched from 3-site to 4-site, hoping to stop the nodules. ...
Posted 30 Nov 2016 • 1 answerFAQ by Drugs.com
Posted 31 Aug 2017 by • 2 answers
I've had 4 infusions of Hizentra but no where can I find how often blood should be tested to monitor how it's working. Any feedback appreciated. MY doctor is over 2 hours away & his nurses won't ask him this question!!! I see him in 3 weeks but am going to Cleveland Clinic ...
Posted 17 Aug 2013 by • 2 answers
I sometimes get the hizentra leaking back out where the needle goes in the skin. I'be been doing these treatments since December of last year. They really work well for me. I have not been hospitalized at all with any COPD flareups since I started.
Just did my first dose of Hizentra yesterday and didn't feel so well today. I weighed and had gained
Posted 23 Feb 2016 by • 1 answer
... SIX POUNDS in one day! I had to do a second round of Hizentra today to complete a loading dose so I'm praying that doesn't result in another 6 pounds added by tomorrow. Anyone else have sudden weight gain with Hizentra? Thanks
Posted 9 Mar 2013 by • 1 answer
I have had 4 heart blockages, have asthma, bronchitis,1 blood clot in lungs and 2 in left leg..all at different stages in my life with the exception of the 4 heart blockages... I had those at one time and I have stents. Which medication would be the best for me? I am currently on Gammaguard IV ...
Posted 13 Feb 2016 by • 1 answer
My IgG was only abnormal. After 2 months, my others dropped over half of what they were prior to tx. I also had new onset of a major seizure. ..broke my nose, hospitalized for 3 days. Dr said to stop infusions... now what? ???
Posted 30 Apr 2017 by • 0 answers
3hrs after infusion I got excruciating lower back pain - requires lots and opioid pain relief. What does this indicate? Have delayed next infusion. Many thanks
How long before IGG numbers went up when you started taking Hizentra subcutaneously? I have cvid and
Posted 22 Jul 2017 by • 0 answers
... just started Hizentra after 9 years infections every other month. I put vaseline lightly inside each nostril several times a day, not blocking breathing but on sides. And find by blowing gently several times a day, wiping nostrils out with kleenex gently and reapplying some vaseline again on ...
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Hizentra, Gammagard, Gamunex, immune globulin intravenous, Gamunex-C, Privigen, Vivaglobin, Hyqvia, Octagam, view more... Carimune, Cuvitru, Gammagard S / D, Gammaked, immune globulin intravenous and subcutaneous, Bivigam, hyaluronidase / immune globulin, Flebogamma, Gammar IV, Gammaplex, Panglobulin NF, Gammar-P IV, Polygam S / D, Sandoglobulin, Carimune NF, Venoglobulin-S 5%, Venoglobulin-S 10%, immune globulin subcutaneous, Iveegam En, Panglobulin, Gamimune N 10%, Gamimune N 5%, Gamimune