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Primary Immunodeficiency Syndrome Questions

We found 9 questions associated with the 'Primary Immunodeficiency Syndrome' topic.

What to do with unused Hizentra?

Posted 12 days ago by jbeutten 1 answer

My husband did not want to continue his Hizentra trial after the 1st week. We have lots left. Can I donate this to someone? We received this shipment on the 1st week of October 2018.

I am considered for Ig therapy. What have your experiences been on Hizentra?

Posted 7 Oct 2013 by mark1994 3 answers

Were you newly diagnosed or switched? Do you administer it yourself? Are you considering switching again? If yes, why?

Does anyone else form hard, calcified nodules under the skin at the infusion sites with Hizentra?

Posted 8 Aug 2011 by kathyhanson 1 answer

In March switched from Vivaglobin to Hizentra for hypogammaglobulinemia related to multiple myeloma. No problems with Vivaglobin, but +/- once a month I form these nodules that last a couple of months and then go away. Two weeks ago switched from 3-site to 4-site, hoping to stop the nodules. ...

Leaks around needles?

Posted 17 Aug 2013 by fishrick56 2 answers

I sometimes get the hizentra leaking back out where the needle goes in the skin. I'be been doing these treatments since December of last year. They really work well for me. I have not been hospitalized at all with any COPD flareups since I started.

How is Cuvitru administered?

Posted 30 Nov 2016 1 answerFAQ by Drugs.com

How often do you get your blood tested after getting infusions?

Posted 31 Aug 2017 by Smallplanetco 2 answers

I've had 4 infusions of Hizentra but no where can I find how often blood should be tested to monitor how it's working. Any feedback appreciated. MY doctor is over 2 hours away & his nurses won't ask him this question!!! I see him in 3 weeks but am going to Cleveland Clinic ...

Just did my first dose of Hizentra yesterday and didn't feel so well today. I weighed and had gained

Posted 23 Feb 2016 by Cmcarroll 1 answer

... SIX POUNDS in one day! I had to do a second round of Hizentra today to complete a loading dose so I'm praying that doesn't result in another 6 pounds added by tomorrow. Anyone else have sudden weight gain with Hizentra? Thanks

Why would hizentra decrease my IgA and IgM considerably? They were normal when I began tx?

Posted 13 Feb 2016 by bethanycn 1 answer

My IgG was only abnormal. After 2 months, my others dropped over half of what they were prior to tx. I also had new onset of a major seizure. ..broke my nose, hospitalized for 3 days. Dr said to stop infusions... now what? ???

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Immunodeficiency

Related Drug Support Groups

Hizentra, Gammagard, immune globulin intravenous, Vivaglobin, Cuvitru, Carimune, Gammagard S / D, Privigen, immune globulin intravenous and subcutaneous, view more... Gammaked, Hyqvia, Bivigam, hyaluronidase / immune globulin, Gamunex-C, Gammar IV, Gammaplex, Flebogamma, Panglobulin NF, Gamimune, Carimune NF, Sandoglobulin, Octagam, Gamunex, immune globulin subcutaneous, Iveegam En, Panglobulin, Gamimune N 10%, Gamimune N 5%, Polygam S / D, Gammar-P IV, Venoglobulin-S 10%, Venoglobulin-S 5%, Panzyga