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Primary Immunodeficiency Syndrome Questions

We found 13 questions associated with the 'Primary Immunodeficiency Syndrome' topic.

5 months SC hizentra increased infusion time to 3 hrs due to side effects?

Posted 52 minutes ago by deborahscarfe271148 0 answers

3hrs after infusion I got excruiating lower back pain - requires lots and opioid pain releif. What does this indicate? Have delayed next infusion. Many thanks

How is Cuvitru administered?

Posted 30 Nov 2016 1 answerFAQ by

Just did my first dose of Hizentra yesterday and didn't feel so well today. I weighed and had gained

Posted 23 Feb 2016 by Cmcarroll 1 answer

... SIX POUNDS in one day! I had to do a second round of Hizentra today to complete a loading dose so I'm praying that doesn't result in another 6 pounds added by tomorrow. Anyone else have sudden weight gain with Hizentra? Thanks

Why would hizentra decrease my IgA and IgM considerably? They were normal when I began tx?

Posted 13 Feb 2016 by bethanycn 1 answer

My IgG was only abnormal. After 2 months, my others dropped over half of what they were prior to tx. I also had new onset of a major seizure. ..broke my nose, hospitalized for 3 days. Dr said to stop infusions... now what? ???

I am considered for Ig therapy. What have your experiences been on Hizentra?

Posted 7 Oct 2013 by mark1994 3 answers

Were you newly diagnosed or switched? Do you administer it yourself? Are you considering switching again? If yes, why?

Leaks around needles?

Posted 17 Aug 2013 by fishrick56 2 answers

I sometimes get the hizentra leaking back out where the needle goes in the skin. I'be been doing these treatments since December of last year. They really work well for me. I have not been hospitalized at all with any COPD flareups since I started.

Primary Immunodeficiency Syndrome - I have Hypogammaglobulinemia and I live in the DFW area of?

Posted 17 Jun 2013 by DeMott 2 answers

... Dallas, TX. I am looking for a doctor who has experience with this type of experience. Thank you

Which is safer, gamunex or gammaguard IV?

Posted 9 Mar 2013 by DTALLEY2 1 answer

I have had 4 heart blockages, have asthma, bronchitis,1 blood clot in lungs and 2 in left leg..all at different stages in my life with the exception of the 4 heart blockages... I had those at one time and I have stents. Which medication would be the best for me? I am currently on Gammaguard IV ...

Does anyone else form hard, calcified nodules under the skin at the infusion sites with Hizentra?

Posted 8 Aug 2011 by kathyhanson 1 answer

In March switched from Vivaglobin to Hizentra for hypogammaglobulinemia related to multiple myeloma. No problems with Vivaglobin, but +/- once a month I form these nodules that last a couple of months and then go away. Two weeks ago switched from 3-site to 4-site, hoping to stop the nodules. ...

Gammagard S/D - Insurance company is making an issue of the fact that it is found to work by the FDA

Posted 5 Jan 2011 by John Duhon 3 answers

... calling it a specialty drug and asking that it have extra costs. (Company as yet doesn't know how much the costs will be) Not only is this different than the insurance coverage that I had before but it is threatening for my well being. The FDA in countering my questions assured me that ...

Primary Immunodeficiency Syndrome - My thighs are getting tired of being pin cushions... what other?

Posted 10 Nov 2010 by porpoise 3 answers

... sites are any of you using that seem to be working out the best for you?

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Related Drug Support Groups

Hizentra, Gamunex, Gammagard, immune globulin intravenous, Privigen, Carimune, Vivaglobin, Gamunex-C, immune globulin subcutaneous, view more... Sandoglobulin, Octagam, Hyqvia, Cuvitru, Gammar IV, Gammaked, Bivigam, Carimune NF, Gammaplex, Gamimune, Iveegam En, Panglobulin NF, Gammagard S / D, Flebogamma, hyaluronidase / immune globulin, immune globulin intravenous and subcutaneous, Venoglobulin-S 5%, Venoglobulin-S 10%, Gamimune N 10%, Gamimune N 5%, Polygam S / D, Gammar-P IV, Panglobulin