Skip to Content

Join the 'Pompe disease' group to help and get support from people like you.

Pompe disease Questions

We found 3 questions associated with the 'Pompe disease' topic.

Pompe disease - My friend has either an autoimmune disorder such as myasthenia gravis or inclusion?

Posted 15 Jul 2016 by Omlick 0 answers

... body myositosis or Pompe. She has the respiratory muscle weakness as well as trouble walking and also has hand weakness and droopy eyelids. She goes for Ivig treatment but it is not clear how helpful it is. How do you differentiate between these 3 illnesses with similar symptoms? She is still ...

What is the average cost of treatment with Lumizyme?

Posted 27 Jul 2015 by radd02 1 answer

My wife may get a recommendation to have Lymizyme therapy. Her dose would be about 700ml infusion. What would be the estimated cost per treatment every two weeks? thanks, RA

Ask a Question

Further Information

Related Condition Support Groups

Metabolic Disorder Including Congenital

Related Drug Support Groups

Lumizyme, alglucosidase alfa, Myozyme