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Pompe disease Support Group
Summary
Our support group for Pompe disease has 3 questions and 5 members. Updated 15 Jul 2016.
Further Information
Related Condition Support Groups
Metabolic Disorder Including Congenital
Related Drug Support Groups
Lumizyme, alglucosidase alfa, Myozyme
Related Condition Guides
Latest News
Newborn Screening Tests Approved
MONDAY, Feb. 6, 2017 – A set of screening tests designed to detect four rare metabolic disorders in newborns has been approved by the U.S. Food and Drug Administration. The "Seeker" system of ...
Latest Questions
Pompe disease - My friend has either an autoimmune disorder such as myasthenia gravis or inclusion?
Posted 15 Jul 2016 • 0 answers
What is the average cost of treatment with Lumizyme?
Posted 27 Jul 2015 • 1 answer
Pompe disease - does anyone with pompes have pain in thier fingers, also fingers locking up?
Posted 31 Jul 2011 • 2 answers
