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Pompe disease Support Group
Summary
Our support group for Pompe disease has 6 questions and 5 members. Updated 15 Jul 2016.
Popular Questions
Pompe disease - I am being tested for pompe , how long does it take to get the results back?
Posted 23 Mar 2011 • 1 answer
Anyone taking the drug lumizyme can tell me how you feel after a treatment?
Posted 23 Mar 2011 • 1 answer
What type of costs and availability are associated with Myozyme? my wife has Pompe Disease, and is?
Posted 5 Dec 2009 • 1 answer
Further Information
Related Condition Support Groups
Metabolic Disorder Including Congenital
Related Drug Support Groups
Lumizyme, Myozyme, alglucosidase alfa
Related Condition Guides
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Latest Questions
Pompe disease - My friend has either an autoimmune disorder such as myasthenia gravis or inclusion?
Posted 15 Jul 2016 • 0 answers
What is the average cost of treatment with Lumizyme?
Posted 27 Jul 2015 • 1 answer
Pompe disease - does anyone with pompes have pain in thier fingers, also fingers locking up?
Posted 31 Jul 2011 • 2 answers
