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Polycythemia Vera Questions
We found 23 questions associated with the 'Polycythemia Vera' topic.
Posted 28 Jan 2014 by • 6 answers
41 yr old female diagnosed 5 months ago with PV & wondering if there is anyone else also diagnosed & trying to find info on healthy items to eat & not to eat with this disease. I've been told 2 good things to eat/drink are purple grape juice (the real stuff, not juicy juice) & ...
Has anyone taken Jakafi to treat PV? My platelets have been off the chart lately and my doc suggest?
Posted 4 days ago by • 1 answer
I am a 65-year-old woman and have had PV for 16 years and treated it mostly with regular phlebotomies every 4-6 weeks along with Warfarin therapy. I worked full-time during the first 13 years of the disease until recently. In 2015, I came down with Shingles, a DVT and PE and my hematologist put me ...
Posted 23 Jun 2014 by • 4 answers
I have read a few support groups and finally thought my feelings my be from ambien. I was told I had Polycythemia vera and could itch because of a high platelets. My count has come down but I still get these same sensations. This has been going on for about 2 years.Some days it is worse than others.
Posted 21 Aug 2011 by • 5 answers
Further testing is being done. Has anyone experienced extreme lower back pain? He is having a CT scan soon. But I am worried about his severe lower back pain. Does anyone experience back pain and where is the pain coming from? Thank you.
Posted 26 May 2012 by • 3 answers
I see this is a fairly small group, but wonder if any of the members have had skin problems? Or poor circulation in the toes and feet. Doctors are trying to diagnose a mysterious problem in my toes. My feeling is that it could be related to PV and Hydroxyurea (six years). They study a biopsy taken ...
Taking hydroxyurea can cause nail discoloration(black spot) and hair loss? I ws diagnosed of having?
Posted 30 May 2012 by • 3 answers
... polycythemia vera last december 2011 from then on i am on my 19th sessions of phlebotomy and in and out of the hospital due to unstable platelet,i am taking hydroxy 3x a day and thromboreductin once a day,i never smoke and drink alcohol and so active ,i dont have idea where i gt this kind of ...
Posted 18 Apr 2011 by • 3 answers
My sister has recently been diagnosed with this disease and because it seems to be so rare, its hard to find a lot of good information from individuals about the pros and cons of the medicine. She doesn't like taking medicine because of the side effects and is worried it will hurt more than ...
Posted 7 Feb 2012 by • 2 answers
had DVT (pulmonary Thromboembolism) 4 years ago and have been on Warfarin since then two years ago I have been diagnosed with Polycythemia Vera and after many phlebotomies I was put on Hydroxy urea. Is there any one out there with both these ailments ?? The reason for this query is if I manage my ...
Posted 21 Sep 2013 by • 2 answers
... effects What are the odds? I am having a large spleen ( 35 cm long) due polycythemia vera since 1990, i took hydra 500 for about 18 years, i stopped it due to reduced number of the plattlet.
Posted 21 Oct 2013 by • 2 answers
PV dx'ed 2009, 54 yr old female, only meds are 81mg aspirin and stomach pill. Hem said in Jan.2013 he can feel the tip of my spleen. He said try JAK2 drugs in the near future. Symptoms from PV started in 2005, but dx'ed in 2009.
Posted 4 Apr 2014 by • 3 answers
Just this week he was diagnosed with Melanoma. I was just reading the Hydrea is used to treat Melanoma, so how could he get it? Shouldn't the Hydrea have stopped it?
Posted 6 Jun 2016 by • 2 answers
My Dad, who is 82, already had a history of basal and squamous cell carcinoma on his extremities and face. He has now been on hydroxyurea for about 3 years, and his skin cancer occurrences have markedly increased. His doctor insists it could not be due to the hydroxyurea, yet there is a warning ...
I am a 39 year old woman who was diagnosed with Polycythemia Vera at the age of 25. My hematologist?
Posted 20 Mar 2014 by • 1 answer
... started me on Hydroxyurea 5 weeks ago. Today was my third blood draw, and my platelets are still over 800. Does anyone know how long it takes for the medicine to start bringing the numbers down? I have also been phlebotomized once during this time, and will be tomorrow as well. I was prescribed ...
Posted 7 Jul 2011 by • 1 answer
... 9600 i am a man 37 years old. that was smoking the last 10 years ago then stopped 2 weeks ago after this routine lab results..is this a poycyhemia vera???
Has anyone had success take the drug jakavi for Polycythemia Vera? I now take 1000 mg hydroxrea dai?
Posted 23 Jan 2016 by • 1 answer
Taking 1000 mg Hydroxurea does not agree with me. I have had the disease for many years... most likely 10 to 13 years. I have felt ok, (except for itching) until taking the extra dose of hydroxurea. Does anyone else have chills? Stiff neck? Stiff body? and Weakness?