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Myelodysplastic Syndrome Questions
Related terms: MDS
We found 21 questions associated with the 'Myelodysplastic Syndrome' topic.
Posted 5 Apr 2013 by • 3 answers
First used Bactroban topically along with Vancomycin until renal failure then one antibiotic after another. Infection now spread over half her chest with blisters and blood in less than a week. Yesterday they said has squamous cell from biopsy. Confused as to how an infection got so out of control ...
My husband has just been diagnosed with therapy-related MDS. He is getting decitabine every 4 weeks?
Posted 14 Jun 2015 by • 2 answers
I would be interested in hearing about others' experiences with decitabine, particularly the side effects and what helps them. We feel pretty much alone in this and would appreciate contact with anyone in this same circumstance. Thank you!
Posted 28 Aug 2009 by • 1 answer
... injections weekly this past year. He is becoming more and more anemic so now they want to switch to Vidaza... any thoughts?
Posted 31 May 2011 by • 1 answer
... have week stomach and headaches, What is taking this medicine like?. Will I ever feel like traveling again once I start it? I am scared that I will have no quality of life once I start this
Posted 15 Nov 2014 by • 1 answer
My muscels get very sore and achey, when I go to bed in the evening and are very stiff in the morning when I get up. Is this a normal ? I have MDS should I be taking procrit?
Posted 29 Apr 2010 by • 2 answers
... they are looking to start everything by the latest May17. I kind of feel lost does anyone know about the whole bone marrow transplant. It seems like alot with being in the hospital and recovering
Posted 24 Oct 2010 by • 1 answer
Discovered I had the condition June 2010. Had numerous Blood Transfusions felt great afterwards for a few days and then felt terrible again. Am on Recormin 30 000 ml. (Also known as Epoetin beta) Started with one injuection weekly. In the last 2 months I have the injection every second week. Makes ...
Posted 13 May 2012 by • 1 answer
MRI shows no problems. After cycle 1 headaches started. Just completed cycle 5 headaches are almost daily getting more severe and affecting quality of life. Dr not sure what to do says my husband can stop vidaza but the alternative is not great! Do you have other people with the same probem
Posted 17 Aug 2013 by • 2 answers
89 year old male, has CHF, MDS, heart palpatations, not eating, very ill, sometimes unable to talk?
Posted 23 Feb 2014 by • 1 answer
Is he at any risk if he freezes-postpones his vidaza treatment for a couple of months? If his tests show that he is doing really fine and his myelodysplastic syndrome seems to be under complete control can he ''relax'' his body and mind for a couple of months maximum? I hope he ...
Posted 25 Nov 2014 by • 1 answer
Just starting Dec 1st.
Posted 30 Jan 2015 by • 1 answer
... what were the results
Posted 25 Nov 2009 • 1 answer
... be given IV I have a port does it seem to work better than shots? v
Posted 8 Dec 2009 by • 1 answer
... Medication is avalible & how much do they cost? What other treatment is there avalible?
Posted 22 Mar 2011 by • 1 answer
are that it has some adverse risks for elderly patients. Is that correct?