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Myelodysplastic Syndrome Questions

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We found 21 questions associated with the 'Myelodysplastic Syndrome' topic.

Mother has MDS port cath got infection doctors question how to treat been in Hosp 16 days?

Posted 5 Apr 2013 by Shears5055 3 answers

First used Bactroban topically along with Vancomycin until renal failure then one antibiotic after another. Infection now spread over half her chest with blisters and blood in less than a week. Yesterday they said has squamous cell from biopsy. Confused as to how an infection got so out of control ...

My husband has just been diagnosed with therapy-related MDS. He is getting decitabine every 4 weeks?

Posted 14 Jun 2015 by marionamiller27 2 answers

I would be interested in hearing about others' experiences with decitabine, particularly the side effects and what helps them. We feel pretty much alone in this and would appreciate contact with anyone in this same circumstance. Thank you!

Myelodysplastic Syndrome - My husband has been recieving procrit and neupogen?

Posted 28 Aug 2009 by lwebbrn 1 answer

... injections weekly this past year. He is becoming more and more anemic so now they want to switch to Vidaza... any thoughts?

Dacogen - I am about to start this medication. I have not symptoms, but doctors say I need this. I?

Posted 31 May 2011 by Louise123 1 answer

... have week stomach and headaches, What is taking this medicine like?. Will I ever feel like traveling again once I start it? I am scared that I will have no quality of life once I start this

Do procrit shots cause muscels to acke?

Posted 15 Nov 2014 by htrag 1 answer

My muscels get very sore and achey, when I go to bed in the evening and are very stiff in the morning when I get up. Is this a normal ? I have MDS should I be taking procrit?

Myelodysplastic Syndrome - I recently been diagnosed with MDS and I met with the transplant dr and?

Posted 29 Apr 2010 by RayUSCG 2 answers

... they are looking to start everything by the latest May17. I kind of feel lost does anyone know about the whole bone marrow transplant. It seems like alot with being in the hospital and recovering

Mds anemia - can you identify with my symptoms and how I'm feeling?

Posted 24 Oct 2010 by MDS Anemia 1 answer

Discovered I had the condition June 2010. Had numerous Blood Transfusions felt great afterwards for a few days and then felt terrible again. Am on Recormin 30 000 ml. (Also known as Epoetin beta) Started with one injuection weekly. In the last 2 months I have the injection every second week. Makes ...

Are severe headaches lasting for days a side effect of Vidaza?

Posted 13 May 2012 by sunny1201 1 answer

MRI shows no problems. After cycle 1 headaches started. Just completed cycle 5 headaches are almost daily getting more severe and affecting quality of life. Dr not sure what to do says my husband can stop vidaza but the alternative is not great! Do you have other people with the same probem

Why give a person 89 yrs old Norco with chf and be sores is dying and not eating?

Posted 17 Aug 2013 by jlv1946 2 answers

89 year old male, has CHF, MDS, heart palpatations, not eating, very ill, sometimes unable to talk?

My dad, diagnosed with myelodysplastic syndrome, is undergoing vidaza treatment for last 17 months?

Posted 23 Feb 2014 by Zivago35 1 answer

Is he at any risk if he freezes-postpones his vidaza treatment for a couple of months? If his tests show that he is doing really fine and his myelodysplastic syndrome seems to be under complete control can he ''relax'' his body and mind for a couple of months maximum? I hope he ...

Are there pill for Vidaza and how long is the treatment?

Posted 25 Nov 2014 by Kenyon N Zryd 1 answer

Just starting Dec 1st.

Myelodysplastic Syndrome - I am receiving shots 5 days each week every 4 weeks. I have heard it can

Posted 25 Nov 2009 1 answer

... be given IV I have a port does it seem to work better than shots? v

Myelodysplastic Syndrome - I am 75years I just found out that I have Myelodysplastc Syndrome what?

Posted 8 Dec 2009 by Nawal Challita 1 answer

... Medication is avalible & how much do they cost? What other treatment is there avalible?

Cardura - Have been taking for more than 12 years. Recent indications from MDs?

Posted 22 Mar 2011 by ltjgpby 1 answer

are that it has some adverse risks for elderly patients. Is that correct?

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Further Information

Related Condition Support Groups

Myelodysplastic Diseases

Related Drug Support Groups

Vidaza, Dacogen, filgrastim, decitabine, azacitidine

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