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Myelodysplastic Syndrome Questions

Related terms: MDS


We found 22 questions associated with the 'Myelodysplastic Syndrome' topic.

My mom is 89, non-smoker. She is started Tarceva 50 mg today?

Posted 11 Apr 2018 by 1495angela 0 answers

Dr is starting her on a low dose because of her age and she is also taking Vidaza treatments for MRS. Is 50 mg to low to help? Will she get side effects from such a low dose?

Myelodysplastic Syndrome - Has anyone been diagnosed with MDS after they received Radioactive iodine

Posted 19 Jun 2017 by cagney65 0 answers

... treatment for thyroid wondering if after you were treated with radioactive iodine ... were then diagnosed with MDS a year or two after treatment... or even a few years after. and what you are taking to treat the MDS..

Myelodysplastic Syndrome - I was diagnosed with MDS anemia about 6 months ago. I currently finish my

Posted 16 Feb 2017 by David Az 0 answers

... third Vidaza of treatment and starting 4th next week. Unfortunately I'm not a candidate for bone marrow transplant. My question is will low blood pressure always be they're two to three weeks after treatment or does it start going back to normal. Not sure how I will do at work with ...

Has Opdivo been used to treat cases of Myelodysplastic Syndrome? Has it been effective?

Posted 17 Feb 2017 by Ken Groninga 0 answers

I have MDS and it is progressing very slowly. Would Opdivo be an appropriate treatment?

Myelodysplastic Syndrome - my husband was just diagnosed with MDS. He first had pneumonia and they?

Posted 31 Dec 2015 by marion17 0 answers

... said his heart was weak, then did blood tests and bone marrow test, discovered MDS as a result of the chemo he had 24 hrs ago. His heart is now so weak and he has a 2nd pneumonia now, so that they can't start chemo. they told me that even with chemo he had only max 8 month to live Any ...

My husband has just been diagnosed with therapy-related MDS. He is getting decitabine every 4 weeks?

Posted 14 Jun 2015 by marionamiller27 2 answers

I would be interested in hearing about others' experiences with decitabine, particularly the side effects and what helps them. We feel pretty much alone in this and would appreciate contact with anyone in this same circumstance. Thank you!

Are there pill for Vidaza and how long is the treatment?

Posted 25 Nov 2014 by Kenyon N Zryd 1 answer

Just starting Dec 1st.

Do procrit shots cause muscels to acke?

Posted 15 Nov 2014 by htrag 1 answer

My muscels get very sore and achey, when I go to bed in the evening and are very stiff in the morning when I get up. Is this a normal ? I have MDS should I be taking procrit?

My dad, diagnosed with myelodysplastic syndrome, is undergoing vidaza treatment for last 17 months?

Posted 23 Feb 2014 by Zivago35 1 answer

Is he at any risk if he freezes-postpones his vidaza treatment for a couple of months? If his tests show that he is doing really fine and his myelodysplastic syndrome seems to be under complete control can he ''relax'' his body and mind for a couple of months maximum? I hope he ...

Decitabine - Husband is to start this drug Monday. He has lymphoma and MDS. The last chemo we had?

Posted 8 Nov 2013 by Mab003 1 answer

... put him in the hospital a month. Reading side effects not sure that I need to encourage this treatment

Mother has MDS port cath got infection doctors question how to treat been in Hosp 16 days?

Posted 5 Apr 2013 by Shears5055 3 answers

First used Bactroban topically along with Vancomycin until renal failure then one antibiotic after another. Infection now spread over half her chest with blisters and blood in less than a week. Yesterday they said has squamous cell from biopsy. Confused as to how an infection got so out of control ...

Are severe headaches lasting for days a side effect of Vidaza?

Posted 13 May 2012 by sunny1201 1 answer

MRI shows no problems. After cycle 1 headaches started. Just completed cycle 5 headaches are almost daily getting more severe and affecting quality of life. Dr not sure what to do says my husband can stop vidaza but the alternative is not great! Do you have other people with the same probem

Has anyone experienced abdominal pain with taking Dacogen? If so, was it pretty severe? If so,?

Posted 8 May 2012 by cbuden 3 answers

... what did you do to remedy the pain?

Dacogen - I am about to start this medication. I have not symptoms, but doctors say I need this. I?

Posted 31 May 2011 by Louise123 1 answer

... have week stomach and headaches, What is taking this medicine like?. Will I ever feel like traveling again once I start it? I am scared that I will have no quality of life once I start this

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Further Information

Related Condition Support Groups

Myelodysplastic Diseases

Related Drug Support Groups

Vidaza, Dacogen, filgrastim, decitabine, azacitidine

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