Join the 'Hizentra' group to help and get support from people like you.
We found 23 questions associated with the 'Hizentra' topic.
Posted 31 Aug 2017 by • 2 answers
I've had 4 infusions of Hizentra but no where can I find how often blood should be tested to monitor how it's working. Any feedback appreciated. MY doctor is over 2 hours away & his nurses won't ask him this question!!! I see him in 3 weeks but am going to Cleveland Clinic ...
Posted 30 Jul 2017 by • 0 answers
How long before IGG numbers went up when you started taking Hizentra subcutaneously? I have cvid and
Posted 22 Jul 2017 by • 0 answers
... just started Hizentra after 9 years infections every other month. I put vaseline lightly inside each nostril several times a day, not blocking breathing but on sides. And find by blowing gently several times a day, wiping nostrils out with kleenex gently and reapplying some vaseline again on ...
Posted 30 Apr 2017 by • 0 answers
3hrs after infusion I got excruciating lower back pain - requires lots and opioid pain relief. What does this indicate? Have delayed next infusion. Many thanks
Posted 20 Aug 2016 by • 0 answers
I have been receiving IVIG for 12 yrs now. I have had reactions to it, thus, needing pre-IV meds. every time. It takes about 4-6 hrs every 4 wks. I go to a nearby hospital. I have wished I could do it at home. But I'm not sure if this Hizentra is right for me? I've read most of the info ...
Just did my first dose of Hizentra yesterday and didn't feel so well today. I weighed and had gained
Posted 23 Feb 2016 by • 1 answer
... SIX POUNDS in one day! I had to do a second round of Hizentra today to complete a loading dose so I'm praying that doesn't result in another 6 pounds added by tomorrow. Anyone else have sudden weight gain with Hizentra? Thanks
Posted 13 Feb 2016 by • 1 answer
My IgG was only abnormal. After 2 months, my others dropped over half of what they were prior to tx. I also had new onset of a major seizure. ..broke my nose, hospitalized for 3 days. Dr said to stop infusions... now what? ???
Posted 17 Jan 2016 by • 1 answer
... feel awful and wonder if it's bc I've not had my dose!
Posted 8 Jun 2013 by • 3 answers
Posted 27 Mar 2014 by • 1 answer
Posted 7 Oct 2013 by • 3 answers
Were you newly diagnosed or switched? Do you administer it yourself? Are you considering switching again? If yes, why?
Posted 16 Oct 2013 by • 2 answers
Posted 8 Aug 2013 by • 2 answers
The reason for this question is the current RX carrier is refusing to cover the script because of the "Immunizations Agents or Biological Sera" exclusion in the Plan description.
Hizentra - Experiencing severe muscle pain especially in my lower body, feels like bad shin splints?
Posted 15 Sep 2013 by • 1 answer
Posted 17 Aug 2013 by • 2 answers
I sometimes get the hizentra leaking back out where the needle goes in the skin. I'be been doing these treatments since December of last year. They really work well for me. I have not been hospitalized at all with any COPD flareups since I started.
Related Condition Support Groups
Hizentra Patient Information at Drugs.com
- Hizentra Information for Consumers
- Hizentra Information for Healthcare Professionals (includes dosage details)
- Side Effects of Hizentra (detailed)