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Histiocytosis Questions

We found 4 questions associated with the 'Histiocytosis' topic.

Langerhans' Cell Histiocytosis - My daughter just got diagnosed with lch shes 9 weeks old I'm so?

Posted 10 Aug 2016 by Bskinner23 0 answers

... scared after reading all the bad outcomes and bad things that can happen. Has anyone had a child with lch ? Can you give me some sort of positive outcome?

Long Term impact of Prednisone?

Posted 9 Nov 2015 by sjdigi 1 answer

I am now 17, but back when I was 11 I was diagnosed with Langerhans cell histiocytosis. For my first round of chemotherapy, I was prescribed with 60mg per day of prednisone for 6 or so weeks. I had the typical weight gain even on chemotherapy, and other side effects. I am curious about the long ...

Langerhans' Cell Histiocytosis -who can talk to about this, is this a medical site or support group?

Posted 20 Sep 2013 by ricklahr 3 answers

I need help I have l c h in my lungs and its real BAD AND nont know... I WAS put on all kinds of stuff and since ive bin on this stuff I have had a lot of siezures blackouts and realy dizzy spells and don't know if its the disease or the meds

Would anyone know of any long-term side effects of valban? I recieved it as chemo from 82 to 98?

Posted 11 Jan 2012 by tw92 1 answer

I was recieving velban as chemo from 1982-1998. pretty consistantly bi-yearly to yearly. it is now aprox 14 yrs on/off later and have been having issues like teeth breaking, jaw pain, bone pain, blood pressure, anemia, lethargic and if you mix the depression into the mix... it is pretty close to ...

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