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Ehlers-Danlos Syndrome Questions

We found 5 questions associated with the 'Ehlers-Danlos Syndrome' topic.

Could this be related to Ehlers-Danlos?

Posted 22 Feb 2017 by anf1018 1 answer

I woke up this morning with moderate back pain. Not my usual EDS pain which is more focused on joints, but muscle pain down the sides of my spine. It feels as if I was in a really bad car accident, and has gotten gradually worse throughout the day until tonight I can barely stand because it's ...

Extreme Pain in Hands - Ehlers Danlos Syndrome?

Posted 7 Feb 2017 by anf1018 1 answer

I'm a bit late, as this happened Christmas day... I'd just like to try and prevent it in the future. On December 25th, after wrapping for several hours the previous night, I woke up with extreme, burning pain in my hands - it seemed like every cell was on fire. I don't usually cry ...

Ehlers-Danlos Syndrome - My twelve year old granddaughter has pots and eds, she has pain in her legs

Posted 25 May 2016 by scorpionan 2 answers

... for a few months but tonight she couldn't walk and says her legs wont work? Her left leg is turning inwards, is this common with eds or could it be a side affect of the 1800mg gabapentin daily?

Ehlers-Danlos Syndrome - I'm wondering what forms of physical therapy my fellow zebras find best and

Posted 1 Jun 2014 by bryonyb 1 answer

... most effective?I'm in the process of starting with a physical therapist and I've heard so many different things about what's good for us and what's not

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