Join the 'Chronic Lymphocytic Leukemia (CLL)' group to help and get support from people like you.
Chronic Lymphocytic Leukemia (CLL) Questions
Related terms: Cancer, Chronic Lymphocytic Leukemia, Leukemia, Chronic Lymphocytic, CLL
We found 33 questions associated with the 'Chronic Lymphocytic Leukemia (CLL)' topic.
Posted 19 Jan 2017 by • 0 answers
I have CLL and was on Mycelex antifungal for Candida when I had the Octagam infusion a week ago. I have not taken the Mycelex in 3 days but have suffered severe Herxheimer reactions during treatment. Today I have the shakes and am very lightheaded and weak.
Posted 8 Oct 2016 by • 1 answer
Posted 4 Jul 2016 by • 1 answer
... 2016. I have been in remission, but have really started the night sweats again. Also, feeling some chills, heavy chest, change in my voice like laryngitis. Any comments or thoughts are appreciated. I see my doctor at UCSF in September
Posted 5 May 2016 • 1 answerFAQ by Drugs.com
Posted 12 Mar 2016 by • 0 answers
Share Your CLL experience? I've been in treatment for four 28-day cycles, and everything seems to going according to the physicians' plan. I've never had any of the major symptoms, just WBC and SEGS/LYMPH number out of "normal." How's your life since joining this ...
Posted 12 Mar 2016 by • 0 answers
While recommendations are for chilled IV fluids being returned to "room temperature," is there any reason they cannot be delivered at "body temperature," as is recommended in a Trial Study at Vanderbilt University Hospital, for patient comfort? (See ...
How long does it take for WBC numbers to drop. I have been on Ibrutinib for 2 months and my WBC cou?
Posted 22 Jan 2016 by • 1 answer
Count went from 40,000 to 238,000. But I feel good since I started the pill and walk 2 miles a day.
Chronic Lymphocytic Leukemia (CLL) - My wife has had CLL for about 5 years living at high elevation?
Posted 11 Jan 2016 by • 1 answer
Without thinking of problems with High elevations we bought a mountain home west of denver to spend the winters at 8500 feet. She seems to have very low blood oxygen or SpO2 her level without Oxygen is 75 to 82% this year. She does not seem to be feeling well after moving here this year and I ...
Posted 24 Aug 2015 by • 0 answers
My husband had been on ibrutinib for about 3 months and after the first month, when he had high uric acid and had to be treated for that, his uric acid has been good. But he now gets these flare ups of gout like pain and swelling in various joints. It last 3-4 days and then moves to another joint. ...
Patient with CLL and pleural effusion. Does imbruvica,420mg per day, affect amount of fluid drained?
Posted 1 Aug 2014 by • 2 answers
Husband was diagnosed with CLL a year ago, refused chemo at first, but got hospitalized in May with ex tensive pleural effusion. They put a pleural catheter(over 3l was drained).HGB was 5.5.WBC over 200000.He was put on chemotherapy, but did 2 treatments out of 6, as his doctor thought it ...
Posted 19 Sep 2014 by • 1 answer
My husband is taking Ibrutinib , he was having bad side effects, he came off it for a week , is now back on it but taking a much lower dose to see if they reappear . He had terrible mouth ulcers, rash plus some others. When he is taking it I notice a real change in his mood, I know it's ...
Posted 5 Sep 2014 by • 1 answer
WBC ... 13.6 Lymphs 74 ALC 9.8 Neutrophils 21 CD38 negative ZAP70 positive>20 13q deletion B2M. 2.8 Had small area of swollen lymphs on diagnosis on left side of neck Now have about a 4 inch area of swollen lymphs on left side, and have developed about a 2-3 inch area on right side of neck ...
Posted 5 May 2014 by • 1 answer
Hi and Good Morning- I was just taken off of my 2 year maintenance of Rituxan. The reason was after receiving 4 treatments I started having questionable neurological issues. Nothing major. The oncologist sent me to have a brain scan. A neurologist read it an said i had too much white matter showing ...
Chronic Lymphocytic Leukemia (CLL) - I am not usually on this end of the question/answer forums but?
Posted 18 Jun 2014 by • 1 answer
... I was diagnosed today (6-17) with CLL. I had my suspicions over a year ago and began watching my numbers but because I was a victim in a crushing accident over 15 years ago my oncologist has been trying to make things easier on me and we decided to forego the pain of a bone marrow biopsy and ...
Posted 7 Apr 2014 by • 1 answer
I have CLL for past ten years. WBC is at the high end of normal over the years. I have some back artheritis in lower spine and dr has RX a regimen of this drug. Is it safe for me to use?
Ask a Question
Related Condition Support Groups
Related Drug Support Groups
Rituxan, rituximab, Imbruvica, Cytoxan, cyclophosphamide, bendamustine, Treanda, Leukeran, ibrutinib, view more... Privigen, immune globulin intravenous, Arzerra, Octagam, Sandoglobulin, Campath, fludarabine, obinutuzumab, Carimune, alemtuzumab, Bendeka, Zydelig, chlorambucil, Venclexta, idelalisib, Carimune NF, Gamimune, Oforta, Gammar IV, Gammaplex, Gazyva, ofatumumab, Panglobulin, Panglobulin NF, Cytoxan Lyophilized, Flebogamma, venetoclax, Neosar, Fludara, Gammagard S / D, Venoglobulin-S 5%, Gamimune N 5%, Gamimune N 10%, Polygam S / D, Gammar-P IV, Venoglobulin-S 10%, Iveegam En