Skip to Content

Join the 'Benlysta' group to help and get support from people like you.

Benlysta Questions

We found 11 questions associated with the 'Benlysta' topic.

Has anyone else esperienced migraines and B cell lymphoma from using Benlysta? I got both.

Posted 12 May 2018 by bdanaher 0 answers

Never had a migraine until I started using it. I stopped it after 6 infusions, then less than a year later had lymphoma. I reported it to the CDC and the drug company with the lot numbers. I was not told nor did I see the warning signs in the literature that it causes cancer. My doctor didn't ...

Has anyone been really avoiding relapses while pregnant on Imuran?

Posted 10 Jul 2016 by chanamiller 0 answers

What criteria should a SLE lupus patient meet in order to take Benlysta? I was told that it's not for every kind of Lupus. Is that correct?

Hi, What might be side effects of 100 mg of methapred taken today with my Benlysta infusion?

Posted 6 May 2016 by loveskids 1 answer

I normally had 10 mg included with my Benlysta infusion, but Rhu. upped it to 100 mg. Is this okay to take every 4 wks and what might I expect? I have been on Benlysta for 4 yrs now and mainly go thru the pain of it all as I have more energy and less pain(s). I LOVE that my headaches are 80-90% ...

Benlysta - Average cost/ grant possibilities?

Posted 28 Jan 2016 by taylorsummerlin 1 answer

my mother has had Lupus for a while now. She's always wanted to try Benlysta but didn't want to "be selfish" and use the money. this year me and my brothers talked about gathering some money to pay for it, and while reading the comments I read information about a grant to help ...

Can anyone give me more details on their own personal experience with Benlysta?

Posted 18 Oct 2011 by woman9469 12 answers

I am finally getting ready to start Benlysta for my Lupus! Its been a 10 year uphill battle with steroids, plaquenil, methotrexate, etc... (all failing). Well, except for the wonderful world of steroids which has caused me 50 lbs in weight gain... so, finally one more month! Anything great or ...

Benlysta - Hello. I have received my first 3 infusions. My 4th infusion is scheduled next week. I?

Posted 24 Apr 2015 by send2courtney 2 answers

... currently have a fever x14 days, every part of my body hurts, and have absolutely no energy. Has anyone had the same experience of feeling worse before they felt better?

I currently suffer from anxiety attacks. Will Benlysta make them worse?

Posted 25 Mar 2013 by moncuy 2 answers

I have SLE and was diagnosed about 9 years ago. I currently take cellcept and plaquenil for the lupus and prednisone for flare ups. I was diagnosed with a mental illness 3 years ago. I have anxiety attacks that have become overwhelming for me. I am wondering if Benlysta will increase these attacks. ...

I am getting ready to start Benysta but had a set back with Norovirus. I missed 2 weeks of work?

Posted 27 Jan 2013 by Lilmamatj 1 answer

From a virus that should have resolved in 24-48hrs. Scared to start therapy for fear of dying from viral infection. Has anyone ecperienced any life threatening infections while on Benlysta?

Ask a Question

Further Information

Related Condition Support Groups

Systemic Lupus Erythematosus

Benlysta Patient Information at