Trying to manage pain for the last 3yrs with alternating ibuprofen and extra strength tylenol... it has been taking the edge off the pain, enabling me to care for myself. I have grave concerns continuing this protocol as I know it's risky with the amounts I've been taking for so long. But what seems to be my alternate option is to be in a LOT of pain which keeps me in bed and the pain gets out of control. As a result I rarely get meals in my body and that just compounds my problem. The problem is I am quite fearful of prescription meds. I was on a higher than recommended dose of Effexor for 15yrs which in turn created 65+ side effects. This drug has been flagged as a possible cause of peripheral neuropathy, as well as the statin drug I was taking because the Effexor raised my cholestrrol. The statin I was taking is one also known for possibly causing peripheral neuropathy. That combination of drugs, plus an underlying disease of MS, lots of stress from being my grandmother's sole caregiver and my husband leaving me, and my health took a huge dive and I've been trying to crawl out of this mess for almost three years now. Bedridden for most of that time. I'm only now living on my own again. I have several different types of pain going on everyday. The worst of it is what I think is nerve pain. It's intermittant, very disturbing pain that takes me down. It's relentless in nature and horribly painful. It can last for days stabbing at me between every 5-10 seconds the duration of each pain lasting about 3-5 seconds. I need to find something to give my liver a break! I don't want anything I have to take daily in order for it to work. I want something that I can take when I need it and not have to keep the doses going... I don't have this pain everyday like some of the other pain I deal with like my skin pain from the neck down. The skin pain is always there day and night everyday for the last three years. It's painful to shower and to wear clothes. But even THAT is easier to deal with... does anyone know of a med I could try? I have tried gaba, tramadol, cymbalta, lyrica... only getting about 20% relief and to me the dangers of those drugs isn't worth the 20%. I do better with the piggy backing ibuprofen, tylenol, and cyclibenzaprine. However, these three, as of this weekend, just aren't helping me anymore:( I'm scared!
Hi Funkygrl, I have severe panic-anxiety disorder. And I too have everyday all day pain. My right hip, pelvic and ovarie area, my right knee and leg. Both my legs swell!! My lower back. And I feel beat up, worn out and just tired all the time. I was taking ibruprofen and Tylenol. And like wise it eased for 3-4 hours. But the pain comes right back. I'm also on "Zoloft" 100mg. For my anxiety. I was recently prescribed "Xanax" 0.5 mg. well. To my surprise. The Zoloft along with the Xanax is not only easing my anxiety and panic. But it also numbs my pain!!! I've been taking Xanax about 1 week now. And my body has been feeling better. I only feel a little pain. But it's no longer all day everyday. I have not taken any ibruprofen or Tylenol since then. I hope this helped you some.
I'm on Gabapentin. It's specifically for nerve pain. I've had Fibromyalgia for years and been on it. It helps.
I do have a broken back now and it doesn't help with nerve pain from nerve roots being pressed in my low back though. I've had bulging discs also for years, so nerve pain is something I've had to deal with for years too. I hope this helps you.
Sorry to hear that you're trying to deal with so many pain issues. Have you seen a neurologist, a specialist re. the brain, the central nervous system and your peripheral nervous system. S/he upon hearing or reading a summary written by you about your various types of pain would at the very least have a starting point for possibly determining more precisely what you're having to deal with. And it's likely the doctor can run some preliminary tests in his office that may or may not require further testing in a hospital to be certain of one or more preliminary diagnoses. The specialist would also have a list of nerve pain drugs that can be trialed one at a time, gradually ramping up the dose of each drug to determine if it helps you. A specialist could also determine whether you have a form of peripheral neuropathy, a nervous system disorder that comes in a number of different configurations. I have chronic nerve pain too but so far not for as many years as you.
Two non medical things that I know help to some degree are trying to lessen the stress you're dealing with which just serves to intensify the pain. Secondly, exercise and stretching can help too. I used to have my own program which was basically long walks each day, but I pretty much gave up on that when a hip had to be replaced, and the result didn't turn out particularly well pain-wise. I was also told that the other hip isn't too great either and I want to delay having to replace it for as long as possible. So I turned to a physiotherapist who specializes in low impact exercises, including various types of stretching, both of which are designed to reduce nerve pain. I had to ask my GP for help in finding someone like this.
I didn't have much hope initially, but I'm beginning to see some minor improvements after only 3 months. I also realize, same as you, I suspect, that it took years for the types and degrees of pain I now have to fully develop. So it may very well take a long time to get some manageable relief too.
My wife has what she calls "white coat syndrome", in her case being phobic anytime she's in a medical setting. It's a phobia too, similar to what you probably experience with prescription drugs. She fights her way through the anxiety, sometimes asking me to accompany her. You can try to fight it alone, find someone to accompany you or seek psychological help.
I wish I could offer advice that would guarantee relief on a long term basis, but I can't. But as mentioned above, tailored exercising/stretching and working on your stress do work - and they don't require prescription drugs, if conquering that fear is simply too great. Best wishes.
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