... Quintenza Patches" applied to pain areas but understand the patches causes severe burning for at least two days. Is this a pain one can cope with for such a long time and is the result effective in removing pain?
I have just gotten over shingles. There is no way in the world you could induce me to put them over the area. Some people can't tolerate them at all. They are the same thing that makes peppers hot. Lidoderm patches can help, and my dr increased my gabapentin. He also injected a long acting anesthestic into the area. That caused immediate relief from the pain. Patches like you have had suggested to you do not work for nerve pain, they are for muscle pain.
I fully understand your pain. Have suffered from PHN since 2007 and have tried everything - all the drugs, a neurostimulator implant and even the Quintenza patch which is not available in Canada but went to Florida to have it applied. The Quintenze application was excruciating even with pain killers. I was literally clawing at the walls while waiting the hours required for the application. I also broke out in a terrible rash after the application. I got relief maybe for a few days at the most and would never try the product again. In terms of the PHN pain I am on 100 mmg Fentanyl patches every 48 hours and that helps with the deep pain but it doesn't deal with the excruciating surface pain. I have a topical with lidocaine, ketamine and gabapentin that provides some help but every night I still can't have sheets touch me. Finding the right fabric (I have the problem from and back torso) has been a huge challenge. In describing the pain i tell people think about when you have had a bad scalding from boiling water or touched a hot stove and then rub sandpaper on it - that is the best analogy to the pain we experience. All I can say is try every avenue possible - anything to give you more pain free hours per day or at least pain hours under a level of 6. A very old doctor hugged me 5 years ago and said how sorry he is that I have PHN and said some of his patients did get some relief after 5 years. He was right I do have more pain tolerable hours however it is still a major disability. I had to leave work and fortunately was covered 2/3rds pay and had drug coverage. I am now retired but my quality of life is well you know. Feel free to follow up with me and I can give you more details on the drugs etc that I have tried. take care jim
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