I seeked sub. Treatment myself. At 32 the back pain started, after birth of my son. I had buldging discs that progressed into ruptured, deg. Disc disese,annular tear, so on, etc. Dr started me on pain meds which by 38 was up to 8 oxycodone 30mg per day, soma, clonapin, etc. My dr retired, lost my ins., lost my meds, N lost my mind. I literaly almost died from pain n withdrawls. I went to sub. To fix my problem, so i thought. Now im viewed as a drug addict period. I didnt ask for any of this. I had dental surgery and was treating as though "addicts" like me couldnt have anything for pain. Thats wrong, unfair, and simply judgemental. Each case is different. I wasnt looking for a high, just something to get thru this surgery! How do u fix this type, ,"marked for life". Issue??
unfortunately and as sad as it is, wether its a legit reason for being on pain meds or not, we will always be tainted. the problem is here is that most these drs, nurses or pharmacies have no idea if our pain and history. at one time at my drs office i was getting poorly treated, and i know its because im prescribed pain meds, i not only turned her and the other receptionists in to my dr and other drs in the office, i told her to go to hell. that not all of us is drug seekers. find a clinic and dr you like, it may take some time, but you will find one.i also believe there is a number to call for complaints and mistreatment from anyone working the medical field. hang in there and try not to let their ignorance get to you,leanne
Addiction is a life-long disease, so it has to be taken into consideration by any medical professional when treating us. It does not disappear when we stop the drugs. We are always at risk for a relapse - and any addictive substance can trigger that relapse.
The key I've found is complete openness with my primary care doctor. She knows my entire history, and knows my needs. I've been clean for over 8 years, and she knows I value my recovery. I do not behave in ways that would be suspect - I do not go to the ER for my problems (unless it is a true crisis, of course). I do not see other doctors, unless I've already discussed the issue with her and she agrees. She has come to trust me - and - if God forbid I needed an opiate pain reliever, she would know that I am going to handle it with absolute caution. (My husband would hold the bottle and dispense it to me as instructed.)
With this kind of clear, open communication, my doctor is happy when she sees me, and there is no stigma whatsoever from her staff. She has told me many times how helpful and 'refreshing' it is that a patient can be this up-front and open about their past history. It built a rapport between us, and I know that in the event of severe, debilitating pain, she will trust me that an opiate is called for. I have to say, it's extremely rare.
Hello ccluv, & welcome to the site. I don't believe you are marked for life! You had a problem, & are trying to fix it. You don't mention how long you have been on subs, but you can wean off of them too. Go to your profile, & click on the Friends. Type in Pattishane61 & when her profile come up, please read all she has to say. She was a drug addict who used suboxone, & successfully weaned off of it & lives a wonderful life now addiction free of everything. Her profile explains all you need to know about the weaning off suboxone. There is a normal life out there for you. Please don't give up hope...
Welcome to the site. I, too, am on subs for the treatment of Fibromyalgia. I have been on pain meds for several reasons over the years (back surgeries, slipped discs, knee surgery, chronic pain, etc.; many symptoms and repercussions of Fibro). I had not heard of Suboxone until my neurologist recommended it when I told him I did not want to take any more pain meds. He referred me to my Subs doc. As of now my Fibro symptoms have increased and I am still on the subs, but do want and will be tapering down and stopping it. I am not sure if there will be a stigma attached to me. I know the frustration you are feeling as there IS that thought if someone is on subs it MUST be because they are an addict. That is false.
I have spoken with my subs doctor (who is the head of a rehab clinic in and outpatient, has written many books on addiction and is a recovered addict himself) about my situation. I did discuss with him the obvious misconception of being on this medication and how to address it. Until this country catches up to others that have been using this medication for things other than addiction, then the misconception will remain. And, that is unfortunate.
I have one thing to add to what has been said so far. Don't tell any future doc's about your past, especially Suboxone. I'm not certain whether you still take it or not. If you do, and you get injured severely, or have surgery, and you must have pain meds then you must tell them because you will need doses due to the Buprenorphine in the Sub. This need for increased meds can last a long time after you're off Sub, and we're not sure how long. But that would be the only reason to tell anyone.
I went for minor dental surgery a few months ago. I didn't tell them I take Subutex. I didn't know how much pain there would be. There wasn't much, and there was no need for any narcotic pain killers. But if there had been I wanted them to give it to me. I know how to handle pain meds and Sub because I have done it about 4 tines since I've been on Sub. Let me say to everyone reading this that you do need to know how to mix them. Do not try it if you are uncertain.
I totally agree, this stigma against Sub is a terrible thing. Maybe someday our society will overcome it. Until we do, you should consider knowledge of you and Sub to be given out on a "Need to know" basis. If they don't need to know about it, then don't tell them.
That's what I now do, because I have burned enough.
I don't think Artist was trying to judge anyone. She was offering an opinion from the eyes of a rehab professional. She is not a dr, doesn't claim to be, and only offered her professional perspective as someone who works with addicts in recovery. I know her well and she is very knowledgeable and helpful with addiction/recovery. However not even all medical professionals are aware of the off label uses for buprenorphine. It was also suggested to me by my personal dr that I use buprenorphine for my many autoimmune problems ... RA, Raynaud's Disease, Fibromyalgia and APS. The off label use for subs (buprenorphine) is not something that drug rehabilitation professionals are often familiar with as they work with addicts to direct them in getting clean.
Patti ... you've known me a long time, Jill, you know me ... I've been around this website for years. LOTS of people on this side of drugs.com know me. Most of my time here is also spent with helping opiate addicts get clean either by using subs or helping those who've become addicted to subs for whatever reason. Since the discussion forum is primarily focused on people getting clean the subject of off label uses of buprenorphine is not often brought up. The forum is productive but it is more singularly focused on recovery rather than a lot of off label uses for medications.
Just wanted to comment as I know Artist personally and I think her comments were misunderstood. She admittedly doesn't claim to be a dr and would have no reason to know about off label uses for subs. Some of us who have been made aware of their uses for purposes other than addiction therapy could easily mistake her intentions in her posts here. I assure you she had the best of intentions with her statements, not trying to pass judgement on anyone. You all have a blessed day!
I think the most important thing is to find a dr that truly cares about u and ur well being. I found one after much seeking that only schedules his patients ever 30 mins, he always wants to know what is going on in ur life since often times pain can be from stress.and/or other things and then he aligns ur entire body and makes sure everything is working properly. He's a DO and always reminds u to juice, fast, eat correctly, seek alternative meds if necessary, etc... He really was a Godsent to me, so find someone that u r comfortable with.
- Suboxone Information for Consumers
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- Side Effects of Suboxone (detailed)
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