hi every1... newby here..i've been on 100mg fentanyl along with morphine and i still am in pain... i didn't realize that it actually WAS working for me until i told doc i wanted to get off the fentanyl try somehing else BIG mistake... he put me on exalgo i guess is hydromorphone slow release up to 64 mg a day... HEckfire i cant take all that all i do i sleep all day..i have no life im in so much pain... i dont hear anyone here saying they use suboxene for pain management and it working for them ... i think my pm just wants to get rid of me being in fla now days they are coming down on every1 and im stuck in the middle literally not leaving my home except to go to doctor appointments... now since 2008... maybe a friends for a few hours..that it doc was fine with me until after the 5th shot in back that did NOTHING..and he want to put some gizmo inside of me and i wont do it... he not interested .."No money in perscription writing"ok i try go walmart once n while on scooter, but cant stay long i occassionally go out to eat maybe once a month if even... this has got me sooooo down i cant take it... im 54 and thought i still had some living to do!!! btw..i just moved to ft myers and if anyone knows of a good pm or gp in this area ccoral as well..i'd be greatful i guess what im asking is... if anyone that uses it for pain management can tell me how well it works for them and if it was for chronic pain..what they were taking before and how much so i can get a general ideal from med to med..make sense? if not ... understood lol... even the pamphlet that comes with this medication says DO NOT USE FOR PAIN..right from suboxene themselves..doc gave me the script im suppose to be starting next month ..and i really dont know what to do..i turned it down once already... so what is a person to do ... so confused please n ty DOES IT WORK FOR CHRONIC PAIN OR NOT?? ok 1 more thing... im not afraid to try it but i want a option to back out and withdrawals? worth it? i du no
I've heard Suboxone works some for pain, not sure how much. It is usually used to help you get off the opiates, which is the pain meds you've been on. That's the way things are headed in this country, towards getting everyone off the pain meds because doctors are too afraid to prescribe them anymore. I would go to the Suboxone support group here on this site and read through the past questions - that will educate you about it. The implant your doctor mentioned - was it a spinal cord stimulator? Do you have nerve pain? If so, you might want to try the trial for that. That way you will know if it works before you have the surgery. Can't hurt and it does help a lot of people. It's a tough situation for us chronic pain patients - doctors were giving them out and now no one wants to and we still need them.
The good thing is studies are showing (and so are people) that the opiates actually cause you to be in more pain. I know I want off of mine but I haven't been able to handle the increased pain while going down in dose. They tell me if I can get off it and wait a few months my pain levels will go down, but how do I get through that pain? I don't think you are going to get anywhere near the pain relief of 100 mcgs of the Fentanyl patch while on Suboxone, but it will keep you from going through withdrawal. Keep reading and posting -
I cannot answer your question personally about the sub use for pain, but we do have some very qualified people that will probably catch up with your question soon. I have read on this site it is used for withdrawal, & pain control, so please try to be patient & someone with experience will help you out. I went the Methadone route for my chrontic pain because of a liver problem, & once the liver problem was resolved asked to be put back on narcotics which was promised. I hated being on a drug that you absolutely had to take a certain dose everyday, that made me so sleepy I would doze off in stores reading labels or at red lights. Very scary. With the oxycocone I am on, if I have things I have to do, I can not take a pill if I choose to function my other duties without concern of being too drugged to drive etc... What a difference this has made in my life.
I would like to give you people names on this subjuect, but that has proven a little fatal to my friends at times, so I will let them answer you directly on your question. I do wish you all of the best, & hang in there, I know the answer is coming. Sunday is usually a little slow on the site, but it should pick up anytime...
Some people do take suboxone for pain but it is not really rx'ed for major pain. The amount of relief the person has with suboxone seems to vary, it worked for my fibro, but if a person has an injury, condition that might cause lifelong pain, methadone would be the longest acting med. It does sound like in your case, maybe your dr has to reduce the number of patients he has on opiates, and thought he could try you on subs, therefore reducing a patient from the opiates patients list. I have seen many here with injury related opiate dependency, did find relief. I hate to say it is a guess as to whether or not it would work for you, you could always try it. You may have to be in opiate withdrawal for a bit longer than the normal 24 hours because of the longer acting opiate you are taking. Talk to the subs dr about the time opiate free you would have to wait before transitioning from the current meds you are on.
As far as to whether or not you could go back to opiates, from subs, yes, but subs blocks opiates for pain relief for 3 to 5 days. You will have to wait for the subs to wear off before the opiates will take effect. Some drs start the pain meds back the 2nd or 3 day off subs after opiates. So, yes you can back out and go back on opiates, just might have to wait a few days before the opiates will work after you stop the subs. Patti
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