I have bi-lateral leg swelling, R worse. Upper thigh cramps," with screaming type pain " Muscle pain all over. Great hunger,. I am diabetic, mostly diet controlled. Age 74. Fingers are locking up, especially on arising. Neuropathy years old. Had polio age 12, lot's of muscle weakness to live with, just adapted best I could. Rested after shopping and this usually helped. But now the fatigue is overwhelming. Lately I feel like I'm sitting on a tennis ball, that's the only way I can describe it. I requested a referral to a neurologist and was mistakenly sent to a neurosurgeon first. I only had very recent ct scans of cervical to sacrum... He seemed dis-interested because I didn't have more recent mri results.(didn't have mri done because cardiologist wanted to be sure the heart stent done 5-11-14 wouldn't be moved ). However, after checking, I can have an mri because of the stent he used. After reading some of your posts, I feel like the general edema, pain in hands and fingers and another problem. No body does any serious detective work and they make appts. 3 months apart citing that's the next available opening. I will drink more h2o and will try vit b 6. I hope I haven't rattled on too much. Sunday 1-18-15 I went to er with my symptoms, after labs, the attending wanted to give an 8 day treatment with prednisone and if any improvement occurs, I should seek further diagnostics from rheumatologist. Took first dose with supper last night, kept me awake and later noticed I should have taken it earlier in am, but I needed some relief if it was going to help. Well, it has, my stiff neck is better and pain in hands & fingers less. Thank you for letting me share this.
Has anyone ever checked you for post polio syndrome? Have you seen a vascular dr for circulation in your legs? Are you on something for the edema? I'd try the prednisone for sure. As my Dad always said "old age ain't for wimps".
I would sit down on the computer and go from head to toe by system and what effects a symptom and what does not. I'll get to the list of systems in a min. Then I'd find a good new internist that you never saw before, and take it to him with all your studies. Sometimes what happens is we see a dr for this symptom and another for that one and nothing gets accomplished. You also need any history in each system.
List of systems: Cardiovascular, Neurological, Endocrine, Musclo-skeletal, Gastro intestinal, genito urinary, respiratory, dermatological. A well organized history is your best offense for this. Also include any pertinent familial history. To find a new dr you can try healthgrades.com.
I'll look in my tablet tonight for mobile apps that may help with all this. I keep track of all my meds and history in apps, and blood pressure, then all I have to do is print it all out when go see a dr. Of course you need to keep it updated. When I see my cardiologist I can give him a list of all my blood pressures since I saw him last and can show him on my tablet the graph of how it ran. He always says, I wish everyone was so organized. What it does is make your visit efficient points out the big problems and supplies the dr with info you don't have to try to remember when he asks.
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