I started Enbrel just about four months ago?
- 4 Oct 2013 by srandjlsims
- 24 Oct 2013
- enbrel, rheumatoid arthritis
and today I woke up feeling NORMAL for the first time in YEARS!!! I am so amazed I am trying not to start crying!! I now have hope again. If anyone has Enbrel concerns, I was terrified to start it, I prepared for God knows what, I am here to say, IT WORKS. It took awhile, but if I have learned nothing else, RA related meds don't kick in right away.
I haven't a question I just wanted to present hope.
So glad you are loving Enbrel and its working so quickly for you. I too have been taking Enbrel. It's been over two years now and I found at first it was terrific and then it seemed to "not quite do the trick". My dr added methotrexate for about a year and then the symptoms of fatigue and hair loss were just too overwhelming so I moved from methotrexate to leflonamide (sp?). The combination of Enbrel and Lefl. are ABSOLUTELY PERFECT for me.
From what I understand it's pretty normal to need a supplement to Enbrel so don't be bummed out if your dr. adds something to it.
Good luck and you are in my prayers :) Les
I have been receiving treatment for Rheumatoid Arthritis for 40 years and I know that wonderful feeling you are having of waking up and knowing that you can get through that day just like everybody else. Feeling NORMAL describes it well. BUT that has not always been the case. Over the years I've had to change my drugs so often because of side affects or they have ceased to work and I've had massive flare ups. But in the last decade I have been delighted to be on a regular regime of a combination of modern drugs for RA that SUIT ME. I am very pleased that you have found a drug that works for YOU. That's what matters. Not what drug you are taking because it would be wonderful if one drug worked for everybody. So stick with it but make sure you listen to any advice from your Rheumatologist and Doctor.
I was once advised by a Rheumatologist it would help if I stopped being negative and concerned with what MAY happen but to try to stay positive and wake up and face each day as it came. At the time I thought he was being cruel but I eventually listening to that advice and found he was right and I now don't think on the long term but enjoy life as it comes, day by day.
I am so delighted that you are receiving treatment that has given you hope.
Long may it continue.
I was on Methotrexate for over a year. it took some pain away but not enough. Then I found a new dr that gave me info on all the latest drugs. I am now on Cimzia & know what you mean. I also take 1-50 mg tramadol a day & feel closer than I ever have to being painless. I didn't realize how much pain I ignored since I was a child. I was introduced by a friend who also has RA. he takes Humeris with quite a few other meds & is completely pain free & is doing awesome but he's also been working on it for longer them me. It is so good to not feel hopeless anymore.
I had actually forgotten that I posted this. Im sorry to say that it turns out I had a med mix-up. I was a bit depressed at first, but as usual we just gotta go with it.
My husband filled up my weekly pill container as I was packing to leave home for a week in the desert with an old friend. I didnt realize until the end of the week that he put prednisone in along with my other meds. I never even noticed. Yeah, I felt normal. I was in tears for about a day after the discovery.
Now, 2 weeks later, I had a pretty bad flare-up coming off the prednisone, but I am actually feeling tons better. My husband didn't realize I don't take the prednisone without strict guidance from the Dr. I label my meds with red marker so I can see them even in the dark or without my glasses, again he didn't know. It is labeled along with the others so I don't make the mistake.
So now, I am doing ok had to get past the little depression.
The good news is that I am able to watch my youngest grandchild and help with his potty training! Something I wouldn't have been able to do not too long ago. Chasing after a special needs toddler AINT ALL THAT EASY! LOL!!
Thank you all for your kind words though, its wonderful to hear others are doing so very well.
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