To treat Autoimmune Hepatitis. Anyone out there with AIH had good luck with this drug? Tried Imuran in April but after 3 wks it made me very sick vomiting/diarrhea. Any info would be appreciated... thx so much! Also down to 5mgs of prednisone and finally starting to feel better. Now I have to be on this 6mp and am very scared about more bad side effects! HELP!!
Hello and welcome to DC Mbsunny - I was wondering if among other issues you are dealing with is "leukemia"??? I saw one of those medications mentioned in your question. You have a lot on your plate and I want to encourage you to be as proactive in your care as possible and do research. I know I had recommended a book by one of the "JUDDS" singers. Naomi Judd also has Hep and her book is quite well-written and really candid about her journey. Perhaps reading something like that will also help you by seeing how someone else has conquered the beast, so to speak.
I see that you are taking 5mg of prednisone... I am taking the same dose but of hydrocortisone because it is more natural to the body. Just a thought there.
Do you know what the definition of "FEAR" is??? It is FALSE EVIDENCE appearing REAL... I don't want you to be afraid of what is happening; can you step in FRONT OF IT and slow it down??? This journey must be a scary one but the more information you gather for yourself... the better you will be handle the treatment plan or even make suggestions on your own. I swear we cannot leave it all in the hands of the doctors and PRAY they know what they are doing. As you read up and study what is happening you might come across some information that hadn't been considered before. After all, a doctor is a scientist first and research is what they do to understand all that is happening in the world of medicine. I am not suggesting that you go to medical school to get on their level but you ARE part of the equation and everything that is suggested to you should be carefully weighed and you should be asking them what the side effects are and what the long-term prognosis is and are there other treatment options yet to be considered because you don't want to be sick!!! Naomi's book also talks about nutrition and I believe she does all of her own cooking now, too.
When you are tired you need to rest... when you are sleepy you need to sleep. Listen to your body and then act. That might be different for the way you do things now. But your body is recovering from this and I do believe there are things you might be able to try that haven't even been suggested to you yet. That is why doing your own research is so very important. Where would we be if it weren't for the internet??? Gosh, I can barely remember those days...
I wish you well and I wish you hope in this journey toward living into a life that is still full and vibrant. May the Light of the Lord shine brightly on you and may your guardian angel protect you on this earth...
I will try taking this med at night before bed...
Did you get dizzy from it light headed?
I want to drive and function once again...
I am scared about the weak immune system thing on this med...
I want out of my house... I avoided going out so I could get healthy gosh I feel as though I am doomed... Cancer side effect Liver Failure side effect?
Hair Loss side effect? Just got my hair back...
Why have the scientist not got something better for us?
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