Hi I was diagnosed with Ewing Sarcoma (in the soft tissue not bone) on April 12th, 2013. I have a tumor in my tongue and some spots in my lungs. I had multiple chemotherapy's and radiation on my tongue and the tumor has stopped growing and has shrunk some they think the tissue is dead. But the spots in my lungs continue to grow and I'm suppose to start Votrient tomorrow but I am scared to death!!! Reading through everything on it has me terrified and I really need advice. I want nothing more than to get this under control and kick its ass!