Should I start Biologics like Remicade?
- 9 Apr 2014 by retracyar
- 4 Nov 2014
- remicade, intestinal obstruction, colonoscopy, diagnosis
I was diagnosed as having Crohns in September 2013 after a routine colonoscopy. It was discovered I had some ulcers and a stricture in my ileum. I was hospitalized for six days in Feb. '14 for a small bowel obstruction. Other than that, I really don't feel that I am all that sick. Very little diarheah, no bleeding, no abdominal pain. Maybe 2-3 bowel movements a day. I would not say that my case of crohns is debilitating. My doctor recommended I start up on Remicade or Humira or some other biologic. Being aware of the side effects, I am a little leary. It would be different if I was suffering badly. I hear of alot of other people taking these biologics that were extremely sick. I just wonder if it is a good decision at this point to start up on biologics. It is true that I do not want to wind up in the hospital again.
Thanks in advance for your advice.
I was in a similar position as you about 5 years ago when i started remicade. Honestly, sometimes you don't realize how crappy you feel until you truly feel good again. (as a nursing student) the fact that you are having 2-3 bm's a day and occasional diarrhea, and a blockage, means that their is still probably something wrong, and you aren't achieving full remission. I myself LOVE Remicade. Being an active person, the freedom from having to take pills or do injections every week is amazing. I can be a normal young adult again, and people don't know i have an issue much less 2 (Crohn's and JRA) unless i tell them. I have yet to have an issue with the medication, but i also receive benadryl and solu cortef as pre medications. However, if you are truly uncomfortable with the switch, talk to your doctor and have him (or a nurse) explain to you why he thinks it is your best option, and what other options might exist for you. But i love it!
Hi retracyar! Hopefully by this point you're better then you even are now. I've been on Remicade for 11 years, and although it's considered to be the 'miracle drug', there are always obvious risks. After about 5 years on the drug, I developed 3 strictures and needed to get a partial ileectomy and two strictureplasties. Although it is possible for the medication to produce scar tissue, it still helps with the pain and quality of life. If you haven't made the decision already, I would suggest you begin the medication. It's better to start it while you're well and remain well instead of starting it while you're sick with a stricture that Remicade may or may not help with. Hope this helps and best of luck!
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