Last January I had a bone spur driven into my spinal cord from a hit while boxing. There was nerve damage at level C7-T1. It took the docs 6 days to see the damage on an MRI due to shadow from a previous double level fusion on my C-spine. I lost the ability to walk, have a bowel movement, was incontinent and all sorts of other stuff but when they did surgery it got somewhat better. I still have a mess of troubles and weakness on my right side but no paralysis. I can feel pin pricks but have a knumb feeling from the waist down so that I have sexual trouble, can not "feel" bowels move, and have pain of multiple types ( freeze, burn, cramp feeling, etc) and in my chest and back as well. I have no one to chat with about this, I am completely alone because all the sites and support groups are for those who are worse off than me. I can even work out in the morning and stand on my legs, though clumsy, if I take extra pain meds but by afternoon I can not walk w/o a walker due to pain and weakness. Some things are getting worse such as muscle tightness and spasms all night long. The only doc who has been really nice is the neuro surgeon. I have been to 2 neurologists and they seem to know nothing useful. I am lost and doing most everything by guess work. I use cath and enema and pain pills and did some therapies that didn't change anything much. I worry I will mess myself up by not knowing more about my condition but do not know where to go for REAL help. I have an app. with a physiatrist in February. Any thoughts out there? Thank you!
I am so sorry to hear about your situation, and I am even more sad that I did not see this post sooner. I have an incomplete permanent partial spinal cord injury. I was an accident away from becoming a paraplegic, and I had two fusion surgeries to stabilize the sites of injury to prevent any further compression on my spinal cord. I still have full function of both legs and arms, although it is certainly not to the lengths I once had. The pain in the middle of my shoulder blades feels like a meat cleaver is permanently stuck in my back, and every now and then, it feels like a mule as given me a good kick with his two back legs to same said "meat cleaver stuck in back" area. I am more then familiar with how alone you feel. It has to be the worst feeling on the planet.
I am hear to listen if you would like to talk more. I will do my best to keep checking the site to see if you have posted anything new. Due to the SCI, I am not as fast as I used to be, and it takes me a lot longer to do things then they did before, so if you do write, and I do not respond right away, please know that it is only because I might be having a rough day or 4... but I am hear to listen, and I care, and no one should have to feel so alone. I understand what you are going through as I do have an SCI, but I have been spared from paralysis. This is a bittersweet situation...
I strongly recommend trying the trial phase of Spinal Chord Neurostimulation. It worked for me and am in the process of getting the implants. When I went through the trial I was having a severe sciatic flare and it lowered the pain at least 60%a plus the other symptoms of nerve damage.
Yes! I was paralyized as a result of a pain pump. At first I couldn't walk but with therapy I gradually was able to walk again. However I have what is called "walking paraplegia". I have no feelings in my legs but I can walk. I also suffer from chronic nerve pain. I have damage to T-10 area.
Hi there I'm sorry to say that I can't help you much but I can tell you that there are people out there going through things just like that my partner went out one night to the pub and ended up getting stated 4 time once in the neck. He now has a partly severed spinal cord along with many of the same things you have. It has been about two and a half years now and life is still going on he is alway getting new feelings he has numbness on his right said from his chest down spasms and nerve damage and muscle weakness too. He has just had a op on his knee due to the his Leg kept giving out on him when walking. Anyway I just wanted to say if your not getting any answers from the doctor that you are seeing you really need to go and see someone who can because you need to no and understand what is because it's not going to go away my partner and i seen about 5 different doctors until we found one that told us what was going on and the way things were. So with that good luck and I hope that you can get so help from my message
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