not given any meds to maybe help him, is it possible that there are no meds to help him, i think it maybe PPMS, need some answers here please
Diagnosing MS isn't completely straightforward as other neurological issues have to be eliminated. For it to be fairly conclusive requires lesions on his brain that can be imaged by MRI and to have at least two different pathologies from nerve damage. I have a sister with the remitting relapsing variety but she is 55 and had it more than half her life. Her MRI currently shows 12 (12 I think) distinct lesions on her brain.
Optic neuritis is often first, followed by balance and increasing neuropathy starting at the feet. There quite some number of medications used and a useful article on MS might still be linked to on the home page.
I've been told that MS is one of the hardest conditions to diagnose since it mimics other conditions. The first step in my diagnosis was an MRI to detect lesions then a spinal tap. There are many good medications to slow down the progression. I found that with my MS, I had to become my own best advocate. If the doctors are slow to get back to me with test results, I call them. It's easy for your records to get buried under other records and a return call missed. Each time your son sees a Dr. have him write down a list of questions to take with. I found that taking someone to the appointment with me helps me to remember everything that was discussed. When you do internet research don't look at unknown websites; they can scare you. Stick to reputable sites like The Mayo Clinic and the National Multiple Sclerosis Society. I also believe in second and third opinions. If it's hard to get responses from the neurologist, it might be time to get a copy of his records and find another doctor. I wish your son luck in getting the help he needs. Once he knows what he's fighting, then he can come up with a battle plan.
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