However I am curious, has anyone had a similar experience to this? When the pain first starts up my big toes both start to involuntarily wiggle slowly. It almost feels like small waves as they begin to move alternating from right to left, sometimes at the same time, pulsing as the pain increases. Before long the sharp stinging sensation starts up where it feels like little knives are being jammed and slowly twisted in the first joint of the big toes. This goes on for a while, soon it feels like a very tight elastic is wrapped around my toes and feet. Not an ordinary rubber band more like those thick black rubber ties with the hooks on the end, you know the ones used to secure furniture in the back of a truck. The band gets extremely tight and by morning the pain wakes you from a dead sleep and it takes extra medication to get the pain at bay so you can get out of bed for the morning trip to the bathroom. Sorry if this rambled on but I am curious if anyone has experienced anything similar, thanks - Erik.
Hi, considering the pain is affecting your feet only, have you considered, or discussed with your doctor that you are suffering with Tendonitis, nerve problems, or arthritis? There are other conditions that affect the feet only, or at least start at the feet. But i don't want to discuss these until we consider the simpler conditions?
Your doctors must love you, as you have a very descriptive, precise way of describing your pain. I was starting to hurt just reading your post! lol
I get the cramping/spasms in my toes - the kind where the toes bend in very unnatural ways and look deformed. Then the spasms move up my legs. By morning my feet and legs are so painful I'm afraid they won't hold me up to take care of my morning ritual. I don't get the tight elastic band sensation, as my feet stay numb all the time. I liken it to the feeling when your foot is totally asleep and you move it and the feeling starts to come back. You know, the flaming needle pricks and the deep down, hold your breath toothache type pain that makes you want to scream? You're right, we all feel pain differently. Unfortunately, no matter how each of us feels the pain of our neuropathy, it is misery!
It was great seeing your email today. I did not realize that your pain was that intense in your feet... That does sound Really painful.. I have Neuropathy of the feet as I mentioned before. But mine is not that intense as you described it.
Mine has the pins & needles especially in my big toes.
I. Have major cramping in my big toe were it shoots up my foot into the calf of my legs.
I asked you earlier what medications they have you on for your diabetes but failed to ask if your diabetes is in the "under control" stage?
Also as far as the Neuropathy goes there are several medications that are proven to help Neuropathy.
There is Lyrica & Neurontin (generic name Gabapentin) I take both of these medications & they have helped tremendously. Before taking them the podunk in my feet especially in the morning were so painful I could not walk but for maybe 10 min. Before the pain was so intense I had to sit down. And in the mornings the pain was so intense that it hurt so badly to even take one step out of bed.
Also there is a Great debate by Alot of people about Opiod pain medication helping with nerve pain.
As you probably know I have Severe Fibromyalgia which is from over active nerves. I heave been on Opiods for about 12 years & I have first hand experience that Opiods DO help nerve pain at least for me & Many others...
If the nurse you spoke to dismissed your request for pain medication that does not surprise me. As nurses are not licensed to dispense pain medication.
The best knowledge I can give you is to go to a Pain Management Dr. they specialize in managing your pain.
also just a little bit of info. If you apply for
un-employment & also decide to try for SSDI you will probably not be approved... As I am actually waiting for my letter from my hearing in front of the judge to find out if I am approved. But I have had a lawyer since the beginning & the lawyer & the paperwork from SS said that if I am working or Collecting
Un-employment that shows SS that you are capable of working & you will not be approved.
But also it takes a long time to be approved through SS so you have make that judge ment call & my best advice is for you to contact a lawyer & ask them that question. Take care, Kathy
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