... severe pain from small?
Small Fiber Neuropathy - Seems like everywhere I look I cannot seem to find anyone who has extreme?
- 23 Apr 2014 by Roxyrennee01
- 12 Apr 2017
- peripheral neuropathy, pain, severe pain, small fiber neuropathy
Added 23 Apr 2014:
I have sfn, which was diagnosed by tissue and skin biopsy, I want to know if anyone else out there who has extreme pain every single day nonstop for the past few years from small fiber neuropathy. Also what do they do and what do they take if anything to help ease the pain. After seeing doctors for over seven years for pain I have taking everything under the sun that I know of and nothing really seems to help. Only recently have I been diagnosed with small fiber neuropathy from a tissue skin biopsy, for years they were diagnosing me with fibromyalgia. I am very happy and relieved that they did find small fiber neuropathy with me but I'm also afraid and scared of how and where else the pain will spread to. Being diagnosed with fibromyalgia before they did the biopsy was horrible to go through. It would be nice to find people out there like me to talk to that understand the pain the suffering and this whole roller coaster ride that we go through.
Roxyrenee. Hello. I happened to see this post. NP is painful. The cause can be many sources. Mine came from a severe fever and organ shut down. It persists due to diabetes caused from medications. It rarely goes away and does have stages. From feeling numb and tingly to severe nerve pain.
If your source is diabetes you can work very hard to reduce your blood sugar levels and lose weight. If it was from another source, not much can be done. As you know, gabapentin is used first since it helps with nerve pain. Basal dial actors may also help so blood flow increases. Exercise, no matter the pain is essential. And finally a good pain clinic will be of tremendous help for you.
No matter the source or cause of the pain, adjusting to chronic pain is difficult and takes real work. My NP is just progressing to sharp shooting pains in my feet.,it isn't any fun that is for sure. My hands not so much with less frequent shooting pain... Gabapentin was difficult to use when I had shingles. You need a very good neurologist and good support to get you to the pain clinic. You will meet others dealing with similar issues. Keep pushing for help. Amazing things can be done and I hope you get the help you deserve.
I've had SFN for 17 years with only a few years in remission. I can tell you that diet has a major role in pain and inflammation, which I've learned over the past 2 years. (See book or websites with the title AutoImmune Protocol). Exercise really helps as well, though, trust me, I understand how hard it is to do when in pain. If you live in a colder climate, getting to hot, dry weather in the winter can significantly decrease your pain.
Low-dose Naltrexone is a very safe componded medication that is new to many doctors. I have a very treatment resistent version, so I have been on every possible med out there and all sorts of additional treatments. Please note ANY changes you experience after you start taking meds. It took me years to figure out that one medication was causing insomnia and depression.
Please feel free to ask any other questions. I wish you the best!
Hi I am in process of getting diagnosed for this but sure this is what I have Just don't know why Cymbalta 60 mg is helping me I refuse pain medicine but stuck in house Clothes feel like sandpaper except maybe cotton gauze or silk I do use a creme on side of legs to help put sheet on at night The fact my skin cannot adapt to temperature changes is so scary like shivering in 84 degree swimming pool My shower must be just right if slightly warm feels like burning me Is this what you go through?
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