parentheses, 8 liters, 6 and 6. She tells me her "liver numbers" are good but diruetics haven't kept fluid off and she is down to 100 lbs. Is she just in denial about her situation and am I being too negative? I need to be prepared. She is alone, unemployed, no ins. so transplant is prob out of question. I'm all she has for family. Prognosis?
Is your sister still drinking? How often is she getting parenthesis? 8L is a very significant amount of fluid. Does she she know what her liver numbers are? What exact liver enzymes she's referring too? It's AST/ALT, alk phos and t. Bili. Ascites is the most common symptom of end-stage liver disease, occurring in 80 percent of people with end-stage cirrhosis. Ascites is the accumulation of fluid in the abdomen, legs and feet; fluid can also accumulate in the chest cavity. Ascites interferes with breathing, increases the chance of kidney failure, causes loss of appetite and can become infected. that's not a good sign. Would she let you go to a doctors appt with her? Is she jaundiced? People with end-stage cirrhosis may have yellow skin or a yellow tinge to the whites of their eyes. Jaundice is more pronounced in people with cirrhosis who have obstruction of the bile duct. The accumulation of bilirubin in the skin gives them their yellow color. Breakdown of red blood cells that can't be properly removed by the damaged liver causes jaundice.
The New York Times reports that 85% of those with the disease have a life expectancy of about 5 years. Once the disease reaches later stages, the prognosis is more dire. According to PubMed, the midpoint survival time for patients with advanced alcoholic cirrhosis is 1 to 2 years. Life expectancy may be significantly lower for those who continue to drink alcohol after diagnosis.
So, again, most importantly has she quit drinking? Liver transplants are unfortunately out of the question without insurance. I hate to bring up these statistics but your seeking the truth. I'd really encourage you to go to her next appt. so you can ask your own answers and get the correct information in regards to your sister. I'm very sorry you're going through this. It's very hard on loved ones and unfortunately cirrhosis is irreversible even if you quit drinking but immediate cessation of alcohol is always the first recommendation. You and your sister will be in my prayers. Best of luck to you for finding out specifically what her prognosis is.
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