... has distended so much it has pushed into the abdominal wall with four loops on my liver. I am very uncomfortable all the time and get episodes of severe pain. Can't seem to get many answers about my situation. One doc has said nothing can be done. Just wondered if anyone is in similar circumstances
Is this a congenital problem?
If so, when did you start developing symptoms?
I've had a resection but you are totally different.
I read it's considered rare and occurring one in 3 million.
I really hope you are going to a university setting like Mayo, Cleveland Clinic, etc.
Out of curiosity, will you explain the treatment you are using and what they are telling you?
The more info we have the better chance on finding someone here that has experience or knows of someone.
God bless you!
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