I was diagnosed with Sever Autonomic Neuropathy from the mayo clinic as my heart was "bottoming" out in the 20s - 30s causing me to loose consciousness. My diagnosis from the cardiologist was postural orthostatic tachycardia. But even on the meds I've received to help my heart keep running and the meds for the neuropathy I feel as though my body is deteriorating. Recently I have now lost feeling in my hands, my eye sight is getting worse and even with compression stockings my feet are still pooling now, as well as random sharp direct pains that shoot strait into an area the size of a quarter but it's so painful I scream ( that seems to be happening more frequently in my head these shooting pains appear else were but on my head most often wether it's my face or the crown of my head the pain shoots strait in) I feel as though my entire body is falling victim to these attacks. So my question is are there any suggestions from anyone that would help because it's becoming unbearable and no one has any ideas it's been classified as treatable to make it bearable but no cure and even the bearable treatment isn't working as well as I'd like I just want to be able to get up and function somewhat normally so if anyone has any ideas I am more than willing to try them. Thank you so much
Have they ever suggested a pace maker? Are you on any of the standard pills for nerve pain? Unfortunately this can effect your whole body. Anything that is in the autonomic nervous syndrome. That controls the things in your body that happen without you thinking about it. Have you seen a pain dr?
The heart is number one. I would run to a doctor for that. The NP is what it is. I have found cold cloths help quite a bit on the really sore spots. Heat will make it more swollen. Keep your feet up as much as possible. Time for the doctor is now. And as I have an uncurable condition, I have learned to live with it and get the most out of every day. Yes, things can no longer be helped. A therapist can help you grieve this loss and deal with the remaining pain. Stay strong and be grateful you are still here. It matters so much to those who love you. It matters far more to you. You aren't alone. Stay in touch.
A dear friend of mine found pain relief in tanning beds. That is not healthy so i suggested she try vitamin D supplement with her doctors okay. I find heat helps my neuropathy pain while others find cooling helps. I also use a daily magnesium supplement helps migraine headache pain. Nutrition is always helpful. Massage has also helped me. The key is to keep looking for a solution and talk to others who also have medical issues. You never know when you will find a solution. Please know you are not alone. Forums like this put you in touch with others who have the same or similar issues. You may come up with a solution that helps them too. It's not easy to deal with pain, but it does make you aware of life's little blessings. This forum is one of them. Some people have worse stories to tell. If we share our knowledge of what works and what doesn't we help each other. Good luck with your quest.
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