... have epilepsy. I am 55 years old and had a grand mal seizure in july of last year. I have lesions on the brain thatn have heales and now I have lines on the brain. I also had a brain biopsy in july of last year and no organisms were found. I was very happy about the results of that. My doc put me on dilantin at frist and the levels were going up and down I had another in Nov. of last year. My doc added keppra I was told that the keppra would help make the dilantin work better. In order to keep me dilantan levels at 16 I had to take 5 a day at 100 mg. which gave me a lot of bad side effects. My keppra level is alway at a 13 level. Then in feb. of this year my doc put me on trileptal with keppra and my levels keep going up and down the levels are 6.0 and then a 9.o to a 2.0 I started out taking 1an the 2 at pm now I am taking 2am and 3pm along with keppra 500mg am and 500mg at pm I am taking both meds at the same time. I stil feel like I am going to have a seisure at least once a day and sometimes twice a day. The feeling of a seizure I know to well. I have come very to having them. I also am making sure that I take all meds on time and never skip a dose. CAN SOMEONE GIVE ME SOME ADVISE OUT THERE
Controlling seizures and the meds used can be difficult. You need just the right mix to control them, without major side effects. If your neurologist can't do that, you have every right to go to another neurologist to have your meds evaluated. Sometimes there is nothing else to be done, but you have a right to have 2 docs tell you that, you'd feel better if you knew the first doc was doing it right.
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