Rheumatoid Arthritis about to see a rheumatologist in 10 days in massive pain how should I prepare?
- 24 Oct 2013 by jdr957
- 31 October 2013
- rheumatoid arthritis, pain, fracture, bone, rheumatology
... decided to register. Recently ( starting around 7 months ago roughly) ive been experiencing moderate to severe (level 6-7.5 for me and thats bad like id rather have a broken arm or something than this) and finally ( 3 weeks ago) got up the nerve to drag myself to my general family doc to see what the deal with this bone and joint pain / stiffness ive been experiencing was all about. He ran a slew of blood labs ranging from lupus to HIV everything accept my blood pressure and heart rates were " just fine, very normal" i was stunned and finally my doc and i came to the conclusion that this issue was beyond him and i needed a re feral to see the rheumatologist. The best rheumatologist around was luckily who i was referred to see. My doc understood the amount of pain i was in so he prescribed me 15 10 mg oxycodone IR pills i was to take one at bed since the pain has been severely effecting my sleep ( even with a recent bump 300mgs of xr seruquel to help with sleep from my psych doc)... i was very grateful to say the least but was concerned about inflamation/ potential joint damage so he prescribed me 600mgs of Daypro to take when i wake up. Its Been 3 weeks since that point things are getting a little worse pain wise during the day the swelling of my joints has gone down and im now splitting the oxycodone in half taking one 5mg half when i wake and the other a few hours before bed docs orders since the whole pill at bed was actually to stimulating for sleep and made my insomnia worse so he ordered the split daytime dose. I have 10 more days until i see the RH doc and the oxycodone is helping alot during the day but it seems to have a much SHORTER duration than it did when i started taking it a few weeks ago... what should i be prepared for before i walk in to the Rheumatoid docs office? My mother goes with me to most of my appointments so she keeps all of my records for me ( love my mom she makes my life berrable shes just awesome with helping me get around to the docs etc) in a nice organised manner since ive got so many med / lab records. Anyways im still in alot of pain had all of my meds (lyrica, a 300 mg xr seroquel 5mg oxycodone 2hrs ago and 200mg lyrica 10mg propranalol) after all of those meds im still starting to hurt badly ( a 7.5 out of 10) would it be plausible to ask the rheumatologist to write me something thats NOT instant release like the NOT IR oxy as im getting desperate pain wise i cant get a restful nights sleep at all anymore and to be honest typing this is extremely uncomfortable as well eve with both wrists braced heating pad etc im close to being in agony. Any other insite as to what i should be doing to prepare for my rheumatologist visit and to possibly help alleviate some of this pain im in. THINGS IVE TRIED SO FAR : oxycodone ( most effective) dayrpo antiinflamatory,2 hot showers today with icy hot right afterwards drinking water taking vitamin e and b12 supplaments from the doc via IV, point cortosone injections in my neck ( was awful i DO NOT respond well to steroids the seem to make me manic and out of controll) amongst other things ( a small ammount of high grade cannabis with a buddy helped alot with the joint side of pain wnt from a 7.5 to a 5 with just my normal meds and 5mg oxy and cannabis)
Sorry for any run ons or misspelled words / bad grammer its a chore to type with two full wrist braces on haha God BLess you all and have a awesome night!
Added 24 Oct 2013:
EDIT: Im only 21 years old as well semms a bit young for Arthritis pain ??
I am so terribly sorry you are dealing with so much pain. Hang in there help is on the way! When I went to my Rheumy for the first time I was prepared with information about when the pain started, where it was and is, what you have done about it (other Drs or meds), what the Drs told you, if you have any family history of arthritis or any kind of RA, Osteo etc.
Remember, the meds for RA (if that's what it turns out to be) aren't effective right away. They can take a couple of months to kick in but it is comforting to be with a dr that can identify with your situation. Be ready for a lot of trial and error with medicines. Since they can't really pin point RA they will try different medicines to decide what you don't have and then they will finally end up figuring out what you do have. Just be patient - not a bad idea to see a pain management dr (maybe your Rheumy has a suggestions) - they will communicate back and forth while you are trying different meds.
Please please have faith and use this support group. I only recently got on this support group and it has helped me tremendously. Just talking with other people who share your diagnosis gives comfort.
Praying for you Justin. Be well. Les
Hi Justin - I don't have RA but have lived the past 17 years with in a whole lot of pain from failed spinal surgeries and osteoarthritis in just about every joint in my body, and with nerve pain in my legs. I'm sorry you have to deal with such bad pain at such a young age. What we have learned here on drugs.com is that it's best to say to a doctor what you have tried, and how each thing worked but to NOT suggest any specific medication or type of medication to a doctor. Unfortunately with the government's war on drugs doctors are reluctant to prescribe pain meds, and evidently asking for a specific pain med is a sign of addiction. We all know it's not, but we've seen too many people get burned after suggesting a med to a doctor. Best to leave the prescribing to your new doctor. Also, I would advise not mentioning the pot at all.
If you've tried it recently enough that you would test positive on a drug test, then try to reschedule. Usually when a doctor prescribes an opioid pain med, they have you sign a contract with them that you will only get pain meds from them, and they do a drug test. I hope this information helps you and you get relief from the pain. Regards - EJ23
Justin-so sorry to read about your pain. I was diagnosed with RA about 3 years ago @ age 40. Rheumatologists will try the path of least resistance by running blood work first. When the blood work comes back it may or may not say that you have RA but a person can definately have RA and have negative blood work. That is called Sero-negative RA and that is what my Rheum told me. He believes in symptoms and how a patient feels not what a bloodtest reports. He started me out on a drug called Methotrexate and Folic acid pills. After a month of taking the Methotrexate I had more blood work and the metho was affecting my liver so I was prescribed Enbrel. The Enbrel has really helped me but it does take about 3 months to start feeling relief from the pain. My Rheum does not prescribe pain meds so I have to see a pain mgmt specialist for those. A fantastic website for RA is RAwarrior.com. I wish you the best and keep the faith as there is light at the end of the tunnel. Kay
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