... was a hairstylist . My hand started hurting like 8months ago it was swollen and every time I pick up anything even a pillow I get a sharp shooting pain in my wrist it goes up my arm . I can't handle the pain I wake up at night and cry . I can't hold my babie as much as I should I can't cook I can't do much at all any more . So do anyone have this like I do . Then I didn't think It could get worse and I went to get up about a month ago and I started screaming and I have never felt pain that bad both of my hips hurt . So now I can't move with out help bath or stand with out help or a walker it horrible pain the doc and he said its the same thing that's in my hand .and he thinks I have another medical problem . So I was on prednisone 15mil for 3 months and oxycodone 20mil so now I'm to stop all of that meds and use a fentanyl patch 75 mil oh that didn't work at all I was in so much pain I could not move at all I would just scream . So I went back to day and now I stopped the patch and now Im taking 30 mil oxycodone please help if u have any info I could use I now closed my salon and stay home with my 4 children and my care taker lol I need help and my husband didn't want to help so I'm doing this alone any info please does ra move around this fast
I am so surprised the fetanyl didn't help, I started out just like you and after two patch rounds, I slept all night! My new Dr made me go back off all pain meds and it didn't take long but I was back to a cane and massive pain.
I don't know if RA works this fast as you describe, have you been sent to a Rhuematologists yet? Did they tell you it is RA? Because my Dr doesn't treat RA with pain meds and neither does my Dad's. I get minimal help from my regular Dr.
Keep yelling until someone gets some answers or treats you with the respect you deserve and need, that would include a husband who doesn't want to help. I am sorry, but I wouldn't have survived the last 5 years without the number one person in my life, my husband. I would say a good portion of our treatment comes from those who believe in us, it makes all the difference. I no longer allow people in my life who do not respect my right to quality of life.
I hope I don't get thrown out of this club for my comment about your husband. I have to think that you are not thrilled either or you wouldn't have mentioned it to a group of people who will never know you personally and that maybe you need someone to say that their spouse behaves the same way. I know of no one with chronic pain who is successful in their lives if the one person who vowed between "sickeness and health" bows out. I hope, for you, that I misunderstood what you meant.
Keep hounding the Drs and looking for the correct "cocktail" for treatment.
My husband is very unsupportive too. It doesnt matter what you show him or what the drs tell him. He thinks I'm just weak and use the pain as an excuse to be lazy. He states he hurts too but he just has to keep going and feels I should be the same way. I know his pain isnt like mine or he wouldnt say stuff like that! The kind of pain I have is not something you can just ignore!! He doesnt believe in getting injections or any of that. He doesnt think I should be on pain meds either although he takes some pain meds too. So I understand the husband not stepping up thing! My husband does help out some but he has no appreciation for what I do contribute to our family. I still cook and I still make most of our income. He does the laundry and some minimal housework but he grumbles about it and makes bad remarks to me the whole time. I've learned to just ignore it for the most part. It is just the way he is and he is not going to change. It is not just me.
His brother has chronic pain issues and he is no more sympathetic to him either! My husband just isnt capable of empathy or sympathy. Is that selfish of him? Yes. But it is just the way he is. I just tell him that if he doesnt like the way something looks he can either do it himself or he can shut up about it because this is the way it is! I'm not laying myself up for days to prove a point. You just have to learn ways to work around if the husband wont step up.
I agree that you should probably see a rheumatologist or at least have your primary doc do some testing to find a diagnosis. Have they told you at all what they think it could be? Prednisone is very effective for inflammation. Did it help? If no, then inflammation isnt the issue-something else is going on. Prednisone also shouldnt be a long term solution. It works very well for inflammation pain but at a very steep price to your body. I wonder if it isnt a nerve issue of some kind? Nerve pain doesnt respond to opioids or prednisone well. Keep up on your Dr. If he doesnt seem willing to discover what is going on-see someone else.
On the medical side (part of your question) I am suffering from Sciatica .. pain from the back down in my tail bone and into my right leg. The oxycodone is not effective for my pain.. unsure of my direction but hope yours can be resolved and I'm so sorry you are hurting. The burden is terrible and I know how you feel there.
I suffer from chronic pain/ disc in my neck and shoulder. I drop everything I pick up on my left side. The Sciatica is a few weeks old and I'm sick of it already. I truly wish you great care and love, and the best of luck with my prayers.
Hi Renee, and welcome. I'm so sorry to hear what you are going through. It is not easy, especially when those who love us, are the hardest on our situation! I think that MANY of us have been in your situation. Maybe not with RA, but with other pain problems. One of my biggest suggestions is to bring your husband with you to an appointment so the doctor understands how much pain you are in, but obviously that is NOT an option. So, now I suggest that you find an understanding rheumatologist, and bring your husband in and let the DOCTOR tell HIM how much pain you are in. Perhaps he will realize that you are not faking, and you need HELP!!
Please though, everybody is right. Go see a rheumatologist! Your doctor is above their head, and you will not insult him by getting a second opinion. There are a lot of medications out there for RA, and narcotics are not the first drug of choice. I believe that there is a medication called methyltrexate. (sp?), but I could be wrong. Someone here can tell you the meds for RA, much better than I can. I just want you to know that you are not alone, and we do understand. Good luck!! I hope that you find a better answer to your pain soon!!
Wow, you sure made some changes fast! Is the Dr who diagnosed you an RA Dr? If not, make sure you get sent to one immediately. You will have your meds changed again, sorry to say, but keep your primary Dr in the loop. My primary Dr will allow for my pain med when the RA won't. I have been on some pain pills since 2007 and now that I am on Prednizone the pain pills are not even necessary after the cycle kicks in. I am down to a 12.5 fetanyl patch now! While I am feeling a lot for achiness, I do not have the sweating side effect any more, THANK GOD!!!
As much as I say how unacceptable it is to have someone you love completely let you down, I don't know that I wouldn't, at your age, have been so strong. You are my hero right now. I know that may sound silly, but a lot of women put up with a lot of crap being scared to make it alone and most are only dealing with children, not a degenerative disease to boot and yet you seem to be making choices for you. I had cancer at 27, I was alone with two small children. The day I was diagnosed the enormity kept getting bigger by the hour. I would've had to go back, who would take care of my babies? I went to a bar with friends, to drink, to laugh, to cry. I MET MY FUTURE HUSBAND THAT DAY!! We have been together 23 years.
Women are not usually allowed the luxury of single minded thinking, we must be constantly juggling everyone and everything in our lives. We cannot turn off our thoughts just because we put them to bed at 8:30 pm.
No matter what you ultimately experience, at least you know what you need to do. Good luck and keep us posted!
Hi Renee we, & welcome to the site. I so understand your pain, & hope they don't find something else too. Are you having a ANA panel done to rule out immune diseases? RA can come on quite suddenly with the pain, but it's possible you could have something else going on too, as these diseases tend to exerbate each other sometimes according to my rheumatologist. I am going thru the same process myself as I have severe osteoarthritis, & tested positve for Lupus for over 10 years. I had rheumatic fever as a child, & my rheumatologist told me last month that these rheumatic diseases can pop up at any time in our life. I tested negative this time for Lupus, but still have all the symtoms. They can't figure me out at all. No, people who have never had chrontic pain don't understand it at all.
My husband & I both live every day of our life with chrontic pain so we both understand how it is, & kind of fill in for each other on bad days. It's actually what got us together in the first place. We met & felt that we could understand each others problems & after 4 years together we finally got married. It's been 22 years now, & I am blessed with him being my support system. I am very sorry your husband couldn't understand at all, but it's not unusual either. I sympathize with you, & your pain problems. I think you will find the people on this stie are a wonderful support system, & your own experiences will help others too, so welcome again to this site. Hope you have better days...
One more thing that I wanted to tell you, is that I have been in chronic pain for over 17 years now. My husband didn't understand what I was going through for quite a while. It has slowly changed, and over the years he has become my biggest advocate. So don't be too discouraged. You just have to keep on explaining, and also, put yourself in his position, as to why he thinks the way he thinks. It CAN work out, it just takes time. Best of luck!!
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