my rls is getting worse. With all the preservatives, and addives in food that aren't listed. Mirapex works unless rls is triggered by preservatives. I've spent many nights walking around until 4:00a.m. until the additive finally is out of my system. I've tried Pramipexole and it triggers RLS. I was diagnosed with RLS 40 years ago, I'm 65 now. All suggestions are appreciated. This is the first time I've participated in a discussion group.
Hi pattim! Greetings and welcome! I know you'll get a lot of help & support from the great contributors here at this website. :) YOU ARE NOT ALONE
My hubby has tried a few different medications in the last few years. Currently, he's using Lyrica 2 X 150 mg (300 mg) at bedtime. Lately, his RLS symptoms have increased so he can also add Pramipexole if needed. (He used Pramipexole for some time until he switched to Lyrica). Dave can add 2 - 3 tablets of Pramipexole at 0.25 mg as required. As you know, pattim, every night is not the same!
At the top of this page is a search bar where you key in Restless Legs & webpages & links will be displayed for you. Also, Drugs. com has user reviews where you can compare Mirapex to other meds. You can browse all medications easily just underneath the search bar. This website also has medical staff available to answer any emailed questions if you require that sort of assistance.
May I suggest joining a RLS support group? There are also forums (discussion boards) available for you, pattim. Believe me, you aren't the only one awake at 4 AM! That could be an opportunity for you to peruse this website if you're able to sit down.
Dave used Mirapex before changing to Pramipexole which was prior to Lyrica. So far, he gets the most benefits from Lyrica & we don't notice any side effects from his usage. One common detractor with Lyrica for some people is weight gain.
You didn't mention your Mirapex dosage. It may need to be increased; if not, then maybe switched to Lyrica or something else. We eat a lot of home prepared foods from scratch so I'm not able to address the additives or preservatives issues for you.
Dave is 56 in a few weeks and has had this condition all of his life. His older sister suffers from it as well as his 29 year old son. Supposedly it's more common in females. Dave & his sister were told it was "growing pains" when they were younger. I met Dave 10 years ago & had never really heard of RLS. It can get so bad that it affects your partner as well, especially if you sleep in the same bed. :(
pattim, perhaps keep a daily diary & write down what you eat, drink, any exercise, activities, etc. & any other factors that you consider important. Afterward you'll be able to look at these records to determine if there are any commonalities.
I hope you get some relief soon, pattim. Everyone with RLS is different & has various levels & symptoms of this syndrome. You'll need to experiment somewhat to find out what works best for you. That's also the same with prescribed medications. You might have to switch after being on one for some time. RLS seems more prevalent now then when I was young. Perhaps there is a link with food or additives or ???
Please send me an email or add me as a friend if you wish.
So now, pattim, you have your mission! LOL Let your fingers do some walking & run around this website! :)
Good luck & all the best to you! from Wendy :)
I used to take Requip. I started with 1mg and a year later my Dr. upped to 2mg at bedtime. It stared not working she she put me on Carbidopa/levodopa it is used in the treatment of parkinson's disease; restless legs syndrome. I take 2 pills (25-100 is the dosage) at bedtime it does help it also makes me sleepy so I can get to sleep at night. It does work for me.
I am 76 and have suffered with rls since my early 50's. For many years I just thought it was nerves and when I realized what it was, I just toughed it out until it got so bad that it woke me up 2 or 3 times a night and many nights could not even get to sleep no matter how tired I was.
Finally, out of desperation, during the last 3 years, I have tried gabapentin, requip, clonazepam, mirapex. Either they didn't work or gave me side effects. Then had an infected tooth, dentist gave me vicodin. No restless legs. Had to beg dr for prescription for Vicodin as rls was destroying my life. I take only 1 at night and it usually works. Rarely, I might have to take a sleeping pill also, but try to space pills at least 2 hrs apart. Take no other meds. and other than rls am healthy.
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