Hi, I'm new, but not new to migraines. I've had them for over twenty years and very severely in the last three years. I've tried everything: anti-depresants, triptans, (narcotics, which is very unhelpful), acupuncture, massage, diet, chiro, botox, lydacane injections, cervical injections, steroids... I'm at my wits end. I have two kids and would love to not have to lay down for half the day. Thanks.
You have tried a lot. First, how many units of Botox were you given? My first visit with 100 units didn't help me at all. Now getting 225 units, I get a lot of relief.
2- Have you tried nerve block or trigger point injections? Those also have helped me a lot.
3- Herbal Petadolex has been proven to reduce migraines by 62 %. It's the only medication that I take other than the patch below.
4- Butrans patch w/ 5 mcg. Gives you 24/7 opiates at a very low dose. New on the market during the past year. Definately helped a lot.
5- Prescription skin gel which I apply almost every day which tones down most of my headaches.
I went from 24/7 severe migraines caused by stroke--very hard to treat--to mild headaches most days.
Sounds like Sara has some good, new options for you to try. I would suggest you also pursue a consult with a neurologist at a tertiary-level medical center - a very large regional hospital or teaching hospital - such as Johns Hopkins, Mayo Clinic, Cleveland Clinic - you get the idea. Even if it is a long distance away, just the consult and tapping in to their new treatments and providers that have trained there etc. may help. Also, you might consider allergies are causing your migraines - I had testing at Hopkins and found that I was allergic to glycolic acid derivatives. Now if I start getting migraines I look to whatever is new or that I am craving - and have found a whole new world that I am allergic/sensitive to. We crave what we are allergic to because we get a burst of adrenaline to fight the allergy - and our brains go for the easiest source of energy. How about that? So check the foods you love the most - avoid them for 21 days and see if you get improvement. I hope things get better for you! ElizaJane
ElizaJane did come up with still another avenue.
The best way to see if something could be triggering your migraines is IgG food sensitivity blood testing. But it may be expensive if your insurance doesn't cover it.
One woman told me that she had migraines every day until she found out from this testing that she was allergic to cauliflower and dairy products. Now not a single migraine since removing the foods.
I had the testing which showed just a slight sensitivity to gluten and dairy foods, but the headache specialist said that with someone with such severe migraines, even a slight sensitivity could cause the migraines. I tried for 6 weeks with the gluten free diet, but did not see any difference. Darnnit. My appetite is so terrible since my stroke that I thought I would starve without the dairy, so I never went dairy free. But if you had a stronger sensitivity from the blood testing, it would definately be worth it to try.
Just a thought there is a great from what I hear Headache Institute in Chicago too. Your not to awfully far away . You might try googling it... Mary
Hello anxietygirlgo. I know that I've mentioned this in the past but your question has been asked before by others. In my case caffeine, in the form of coffee. Years ago, I had migraines, and well, since drinking coffee, which I also enjoy, I really can't recall when I had my last migraine. The odd headache, yes, but nothing compared to what I once upon a time was going through. Regards, pledge
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