I am 52 years old. Severely ruined life with RLS. Equip didn't work. Mirapex did but caused severe side effects with shopping. I was on 1 mg. I am on Cymbalta 60 mg. I quit everything and thought I would try gabapentin and tramadol. That doesn't work either. My boyfriend will leave me if I go back on Mirapex. Last night after 1200 mg gabapentin I could not sleep. I tried Lyrica and I can't function or get out of bed the next day. My father was a General Surgeon, he suffered too before he passed away. I am a recovering alcoholic so I don't like to feel loaded. Homeopathic drugs never help at all. I have SO MUCH TO LIVE FOR, but this is totally unmanageable. Someone please help me!
Severely; Question how long in a row have you stuck with the Lyrica? if just a day or two here and there it won't work. You need to take that one every day about the same time each day and you know you well work through some of the side effects they get much better in time. but you have to reach a blood level and that takes 6 to 8 weeks. But however, you should start to feel some results in 3 to 4 weeks. Also, there are other medications used for RLS these days but you would have to talk to the doctor again. I am with you forget the Homeopathic meds they are a joke. and you do still have a lot of life yet even some of the newer Antidepressants they don't know why but help many people with the RLS. OR A COMBINATION OF A COUPLE OTHERS If you're not getting the results from the doctor you seeing get another opinion.
This is just some food for thought and to make sure you stick with the medication they way you are supposed to. so I hope this well give you some encouragement. hang in there And check this out with the doctor. have a good evening and best of luck. Chuck1957
Dear Severely, I understand where you are coming from, except the sleep part. Lyrica just never worked for me at all. I did not have side effects, but I also had no pain relief. Took it for over a year and 1/2, tapered off. Stayed off 6 months, tried again b/c my doc REALLY believes in it .I just had no results, good or bad. Finally, after my long periods of on and off, I convinced my doc it wasn't for me. Some people get great results, others not so much. Perfect example of how meds work different on different people. I hope you find a combo that works for you. You deserve to feel better!!
HI Severely I am so sorry you are suffering. I understand completely as I have to- I too am a recovering alcoholic so I understand where you are coming from. Requip made me sick so I went to Mirapex which worked for awhile then the dose I was taking stopped working and I also realized that the Mirapex had a lot do to with my depression. So I cut back on the and tried Neupro patch and it was working great until I developed and allergy to the adhesive. talked my Dr. into Horizant which is like and extended release gabapentin 600mg x day-it is very expensive but if you have insurance there is a drug rebate that will pretty much pay you copay. But I also was diagnosed with Parkinsons several years ago and am taking Sinemet- this also helps with restless legs.
so long story short I am taking Horizant, Sinemet, Mirapex (1/2) and Tramadol for the pain, even with all of the I still have break thru days. The Tramadol does not give me a high or knock me out so it hasn't been a problem for me but everyone is different. Sorry this is so long. Hope this helps and that you find the relief you need your are in my prayer
Hi severely, I am very sorry to hear what you're going through but I have been there myself and I truly empathize. I have posted this on other questions, but I will post it here for you as well. One thing I tried that worked for 10 years was amitriptyline, a tricyclic antidepressant. Like Chuck said, they don't know why these work but this one certainly did for me. I was started at a low Dose of 20 mg and it worked for about six years and then it was bumped to 30 mg. I got a full 10 years of relief until it finally just quit working altogether. Perhaps this is something you might want to discuss with your doctor. Also, as Chuck recommended, do an Internet search for RLS relief and you will find so many things that people have tried that may or may not have been successful for them. Keep in mind, what works for one person may not work for another and most medications will take some time before you get the full effect.
Just be patient and persistent and work with your doctor. I will keep you in my prayers and good luck on this journey. If I can help in any other way please post back and I will do what I can. Good luck to you!
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