My husband was diagnosed with Reiter's several years ago. He has gone through the gambet of medications. He is currently on prednisone. If he goes below 10mg he has a flare up. This last flare up has lasted over a week w/no relief. Is there anything he can do to reduce the pain?
I am sorry your husband suffers from this ciöndition.
I am not a doctor nor pretend to be one at all... I am just a caring individual.
(Formerly Reiter Syndrome)
Treatment of reactive arthritis is based on where it has become manifest in the body. For joint inflammation, people are generally initially treated with nonsteroidal antiinflammatory drugs (NSAIDs). These medications include aspirin, indomethacin (Indocin), tolmetin (Tolectin), sulindac (Clinoril), piroxicam (Feldene), and others. Among their potential side effects are gastrointestinal irritation, including ulceration and bleeding. They should be taken with food to minimize this risk. Corticosteroids, such as prednisone, can be helpful to reduce inflammation and are used in the short-term treatment of inflammation in reactive arthritis. They can be given by mouth or by local injection into the joint. They are also used to decrease tendon inflammation in some forms of tendinitis.
Sulfasalazine (Azulfidine) has been shown to be effective in some patients with persistent reactive arthritis. Potential side effects of this sulfa-based medication include sulfa rash reaction and suppression of the bone marrow. Therefore, blood counts are monitored when Azulfidine is used long-term.
For the aggressive inflammation of chronic joint inflammation in reactive arthritis, medications that suppress the immune system, including methotrexate (Rheumatrex, Trexall), are used. Methotrexate can be given orally by injection. It is given on a weekly basis and requires regular monitoring of blood counts and blood liver tests because of potential toxicity to the bone marrow and liver.
Please contact your doctor and discuss further treatment.
Thank you and I hope you find the right medication for your husband.
The Arthritis Foundation
P.O. Box 19000
Atlanta, Georgia 30326
National Arthritis and Musculoskeletal and Skin Diseases Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
Toll Free: 877-22-NIAMS (226-4267)
I don't know if he has been there, but it's called the pain clinic.
Check your area in phone book or talk to you Doctor. They work with drugs and A nerve blockers to relieve pain
I am going in the 28th of this month to check this type of
They have done some good work with this.first they do a temporary try.
if this works and the pain is going to be in that spot forever, then they do a permanent one
I've had RS for thirty years. I have used indocin, methotrexate (mtx), plaquenil, myochrysine, enbrel, feldene, vioxx (yes, tias & strokes), celebrex, motrin, aspirin, marijuana (for pain & mtx), and butazolidin (became illegal in late 1970s for humans, but earlier barred for horses).
I am NOT a doctor although my rheumie says I would have good enough to be one. The pain, exhaustion, and nausea destroyed several years of my life spread over the past thirty.
My suggestions to reduce pain (in no particular order) are: 1) stay active as much as you can even if it hurts, if you don't the disease will "eat" your soul before it "eats" your bones (my MRIs show osteopenia but my muscles keep me strong); 2) eat good food, 3) don't smoke and don't drink to excess, 4) join an arthritis support group, as you'll see where you rank in pain, fear, anxiety, etc. and support others as you support yourself!!! 5) keep charts on your weight, BP, pulse, sleep, fluid intake and output (make sure your urine is light colored), doesn't help to be dehydrated ever (bad for the heart, kidneys, and your energy level), 6) realize you've got something for the rest of your life, 7) get the HLaB27 test (it's generic for 7% of whites with a northern European heritage), 8) try to get physical therapy: learn new strengthening exercises, meet new friends, etc.), 9) stay away from prednisone if you can, 10) marijuana is good to let your brain receive your pain differently (I'm not saying you should "stone" yourself; just a "hit" or two; you'll have to experiment by starting slowly), 11) if you take MTX also take folic acid and leucovarin (if the nausea is still bad, maybe some marijuana); 12) if you take MTX take it by subcu injection; the pills really made my stomach upset (acid reflux and sometimes mouthfuls of vomit even at 27 mg/week).
I hope this info helps. I'll watch for comments in the coming weeks and months.
I am 67 and got this disease at 10 years of age due to a mild food poisoning event. The disease went away after a few months but, after 20 years, it came back with a vengeance. I was a working musician in a jazz quartet working for a pianist from NYC but eventually, the severe pain in my back forced me to quit playing. That, in itself was a form of death but I am still here due to the responsibilities I have for my wife, daughter and 4 cats. The pain is awful as I have had 4 very involved spinal surgeries and also have eye pain and a painful skin inflammation in a very sensitive area so to speak. It is hard but your husband must learn some stretching exercises, consult a pain control clinic, eat fresh fruits and vegetables and walk to keep moving! Stay away from too much booze especially beer. He can never give into the pain or the joints will get more tender and the pain will only get worse. I am on Tramadol and Neurontin and Sulfasalazine.
Make sure he finds a GOOD rheumatologist as well. Most GPs do not have enough knowledge to cope with this painful and life threatening ( severe depression ) disease! I wish you the best! Take it from one who knows!
- Prednisone Information for Consumers
- Prednisone Information for Healthcare Professionals (includes dosage details)
- Side Effects of Prednisone (detailed)
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