... when the pain meds just aren't doing the job, what are some other ways to deal with the break through pain?
What meds have you tried? Knowing this will help us to give you suggestions. I understand that your son is being deployed, which is stressful. It seems that stress bothers so many of us in many ways. While I don't know what to recommend for you in meds-I do recommend alternate medicine to help reduce stress. meditation-I know some people consider it as un-Christian, but prayer is another name for meditation-while prayer is active-it releases the same hormones as meditation. Massage can be good, but I know that sometimes RSD makes it painful to be touched-it burns my skin. Hypnosis is excellent. I use the alternate of self-hypnosis. It helps me control pain and stress, which helps the meds work better. I hope that you can be helped on this site. Pain clinics run by anesthologists are the ones that have been effective for me. Different pain clinics use different methods and have different goals.
While I don't have RSD, I DO have un-remitting, constant agony, so I have had to find coping techniques to lean on when the drugs/medications don't seem to even touch the pain!
I find that listening to music seems to help. Not at "radio on in the background" levels, but rather using headphones and enough volume to completely block out extraneous sound. It is amazing how much more you hear when you close your eyes and concentrate on the music! (Classical is great, but so is any vocals or techno... ) As I concentrate on the different instruments and/or harmony lines in the music, my perception/feeling of the pain seems to fade somewhat. (Especially if I am still.)
A really good book works. One I can really get "lost" in.
I don't really do 'meditation', but I use prayer and something I call 'mental movies'. MM's are where I close my eyes (usually with softer music on with NO vocals) and create things on the black canvas of my mind. Istart, maybe, with creating a boat/ship/sub. first comes the chair I would sit in, then the control yoke and instrument panel. I design each switch, light, window, pedal, seat-belt, etc... (I often use this to go to sleep.)
It may sound odd, but when my first wife and I attended Lamaze classes (natural childbirth) they taught a 'distraction' exercise that I also use now. It involves counting by touching the thumb to each finger as you change the count back and forth like; One (thumb to first finger) and Two (second finger) And Three and four and two and three and one and four and two. Changing the rhythm constantly. You count out vocally but softly while concentrating on breathing in and out. What can I say? It works.
I hope you are able to find something that helps. :)
I have been seeing a pain clinic for my RSD for 12 yrs. Have been on Fentanyl for 11+ yrs. I find I must keep away from stress, and when the weather changes are coming around, it's best for me to stay low and be quiet. After all these yrs, my rsd has changed somewhat. I don't burn qute as much as I used to when I first came down with the dystrophy. I go on and off Lyrica 40 mg 2 times per day it depends on the time of the yr. I am now having to come off of the Fentanyl patch that I have been on for the past 11 yrs, the insurance company is now going to require a huge deductible to be paid first then they'll begin to cover some. I am on SS, have a bit of addtional income and they say now, I make too much money. My income hasn't changed at all for the last 11 yrs, but now make too much. So change must come.
The Fentanyl has done so much to help me. I was orginally on 100 mcg, and gradually I reduced myself to 50 mcg over the years. Good luck, lheck
I've been on Fentanyl 50 mcg. for about 11 yrs now. I was on Lyrica and the oxy and darvocets( when you could get them) and a few other things. Now for the break thru I take Ibuprofen 800mg, and beleive it or not it is better for me than all those other narcotics. It does good for me w/ the fentanyl. I am no longer taking the Lyrica, and feel better being off it too. I will see when next summer comes as that is when my bad time is. I also take quite a bit of B12, but that I am told is not harmful and that keeps my energy level up. I feel lots better now for sure. One day will try to come down farther on the Fentanyl. Was at one time on 100 mcg, then reduced myself to 50 mcg, will try to do the 25 mcg one day, I hope. it's one day at a time.
Hope you'll get feeling better.
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