... some all due to a injury and one surgery. I recently hurt my hand and now it looks like it kicked in my rsd. I have had a spinal block done each time and it works. I guess my question is I have never had happen to my hand and I'm nervous to know how long before I should see about getting a spinal block done. I'm already having a lot of pain and coldness in my hand, not to much swelling yet
I've had RSD for about 18 yrs, but getting a correct diagnosis took nearly 3 yrs. Back then, many docs believed RSD wasn't a real disease. When they told me RSD might be a diagnosis, I was blessed to find an RSD Specialist (by myself) within 100 miles from my home while researching the disease online. Since they had been injecting, poking, & prodding me for so long (along with a few surgeries), my nervous system was getting more and more "angry" from the invasive procedures. (Nerve & spinal blocks, and other types of injections are meant to try to shock your nervous system back to normal.) My Specialist told me not to agree to any other invasive treatments or even surgeries that aren't absolutely necessary because I've had RSD for too long. The longer you have symptoms, the less chance a spinal block or any other treatment will help you.
If you had a correct diagnosis of RSD in the past and your symptoms were resolved with treatment, you were very lucky because they caught it early. Catching it early is essential for successful treatment! Each other time you had what you described as a flare-up, it sounds like it was from a new injury or trauma. If not caught early, RSD can spread to unrelated areas, or all the areas where you've ever had symptoms could all flare-up at once!
I don't think you can ever really get rid of RSD, because if you're predisposed to get it in the first place, another injury (or any other trauma to your nervous system, like surgery), could cause flare-ups or symptoms, even in unrelated areas. Since you know you're predisposed to RSD, you should be extra careful to avoid injury and only have surgeries that are really necessary. My Specialist recently told me that if you have RSD, you shouldn't even get the Shingles vaccine. The side effects of the vaccine in a person with RSD could be worse than the disease itself!
Whatever treatment worked for you in the past to make your RSD calm down may work for you again and again if it's caught early. Stick to what works! But, if invasive procedures like nerve blocks are no longer helping, they have to be stopped because at that point they could be doing more harm than good. So many RSD patients say that "pain specialists" made them so much worse. I can tell you this is true from experience.
You said you had spinal blocks done in the past, but now that the problem is in your hand, I don't think they'd treat you by injecting your upper spine, unless there's a disk problem. My symptoms were mainly in my arms & hands, and the blocks they gave me were in the front/side of my neck in a bundle of nerves called the brachial plexus(?). That bundle of nerves spreads out down your arm. I was supposed to have a series of 8 blocks, but since only 1 did (hardly) anything positive, I stopped after 5 of them.
If these blocks are what they want to do to you, I would strongly advise you to get a 2nd opinion, preferably from a neurologist familiar with RSD, because these blocks are a horror to receive and can disable you permanently!
I'm really sorry if I'm scaring you, but I don't want anyone else to get the permanent neurological damage these blocks gave to me.
I sincerely hope you continue to catch it early and have successful treatment. Treatment that only helps you and not hurts you.
Good Luck and God Bless,
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 26 Oct 2009 • 5 answers
Posted 18 Nov 2009 • 4 answers
Posted 17 Jan 2012 • 3 answers
Posted 16 Nov 2012 • 2 answers
Posted 12 Aug 2016 • 2 answers