I have CRPS/RSD. My neurologist recently said he thinks I have some type of myotonia. I was wondering if symptoms of myotonia are also symptoms of RSD. I get severe muscles contractions and muscle weakness. When I get cold my muscles freeze up and make it impossible to function. I am unable to function until my muscles are warmed up by heat of some kind. When the muscles freeze up it's like being paralized. The colder I get the more muscles in my body freeze up or contract and the harder they contract. It is also very painful. I have intense sweating and muscle contractions when I am asleep at night. The contractions are painful and wake me up. Due to the strong muscle contrations, I am struggling to keep my range of motion in my joints. Is this typical for rsd patients? Thanks!
Some of the things you talk about are like my RSD, but I don't know that much about it. I think that all RSD patients have a type of arturitis because the nerve endings cause the muscles to atrophy around joints. For me, it's the right side of my neck-some doctors say my shoulder. I took a swimming class, and the instructor was all over me for not fully extending my right arm.
My RSD is atypical and I obviously have an upper right quadrant damage. When I've talked to other RSD patients-in person-the conversation is more about how it happened, what did we ever do to end up like this-pros and cons of morphine pumps and other pain management strageties-so I can't help you with the other questions.
I hope that you find relief-I really do. It sounds like you have a doctor that's on top of things- hang in there with him/her.
This makes it easier for me to look at your symptoms while answering your question-what's the same or different betwee us.
Okay- I love cold-. When my RSD is bothering me I get shooting pain in the affected areas-mostly my breast and little finger from cold. A year ago-it was 20 below and I walked my hounds at midnight. We came back covered with blowing snow and ice. A breast biopsy did it to me-and my hand turned black. The pain makes me fatigued. I didn't have cramps-and don't have RSD cramps-it was a radiating/stabbing pain-most of my friends complained about the radiating pain. Might get a little relief with codiene-morphine- but a bump or vibration from a steering wheel set it off again. Are you on statins-because the night sweating and muscle contractions are side effects caused by statins. My doctor labeled them as seizures.
Back to the RSD- I could only sleep an hour or 2 at night-the strongest pain killers worked for that long and I was like the living dead. The contractions caused by RSD are slow working and long term. It seems that I spend about half of my life in a hot bath tub and doing stretches and using light weights to keep my right side flexible and functioning. Atrophy is actually the type of muscles contracting-some call it a form of muscle wasting because the muscle shrinks. Muscle pain in joints and range of motion is also a side effect from statins used in reducing chlorestral. I'm now going to specialists for that. I think it's worse because of the RSD. My shoulder muscles began hurting so much that I had back spasms 2 weeks ago. X-Rays showed a healthy shoulder blade and collar bone.
My insurance company wouldn't approve PT after ganglion stellate blocks for the RSD so my left arm is contracted now. I take Baclofin 20mgs 4 x per day for the contractures & cramping, it works well for me. Also Neurontin for the neuropathetic pain. Don't let the doctors put you on any opiates they just cause more problems, in my humble opinion!
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