... know if hypothyroidism is an unrelated condtion to rsd or a condition that possibly predisposes one to rsd. As a child, when it would rain, my legs would get very cold and hurt. I would cry and try to warm them. As I got older, the pain levels increased and I found that taking motrin and warming my legs helped. Now I have rsd and cold is my enemy. So is being too hot, but not to the same degree as being too cold. My thyroid levels have been jumping all over the place the last few years. The thyroid test over the last two or three years have showed hypothyroid but the doctors said they don't treat it at that level yet. My new pc doc just started me on levothroxin about 10 days ago. I have more energy, but cold is still my enemy. Has anyone being treated for hypothyroidism had any improvement with rsd symptoms? Thanks.
Hi, you've raised ome interesting questions. For me the hypothyroid started first. I didn't have the leg pains, and I was on a track team. I do remember sitting in Southern California in front of a heater, wearing a sweater in the summer before air conditioning. It took until the late 1980s before mine was caught. It does bounce around, but takes time to move-like 11 years to go from really low to high. I think that many doctors don't care that much about thyroid until it causes other physical problems. My RSD was caused by sloppy surgery when I was in my 50s. It's in the upper right quadrant, where is your RSD? I'm glad that you're having more energy from the thyroid hormone suppliment. I do agree that aches, pains, depression, being tired, weak go with a thyroid disorder. There are 2 types of RSD, the one caused by a specific event-a fall, surgery, car wreck, etc. Others develop RSD without knowing exactly what caused it.
Rollerskater, OW! I am so very sorry that another person has something like this. I have had RSD for nigh on to thirty years. It started in my knee and progressed from there. I also have had hypoyhyroidism, but mine was after the fun began. Seventeen years after the onset of RSD my heart stopped. I was revived with electricity and adrenilin. I was later put on an anti-arrhythmia med that turned out to be very toxic to me. My thyroid was in peril. I had to seriously reevaluate the importance of one organ over another. My heart won (kids) and I had to let my thyroid go. Ufda! Now I have an implanted defibriator, no longer need the toxic med. Yea progress! But, my thyroid is dead and I also must take Levothyroxin.
My skin is on fire. I've found that LIDODERM Lidocaine Patches are great, except that you can only wear three at a time.
I have to go for now, we have to buy an RSD friendly car.
I have had RSD for 4 years and been hypothyroid for 8. I had my thyroid and three out of four of my parathyroid glands also removed. This was due to having many, many nodules that interfered with my swallowing. They were all benign. :-) I take Levothyroxine as well as Cytomel for my Vitamin D levels.
I am not sure if the thyroid issues and RSD are related in any way... yet. I had always heard and read that they were not, however new research is saying it is a possibility. Until they identify a specific gene mutation, which they haven't yet, they cannot classify RSD as an autoimmune disease.. Those with thyroid issues usually see an endocrinologist for treatment whereas I recommend a Interventional Pain Management doctor, an Interventional Radiologist or a Clinic that specializes in RSD management to find the most knowledgeable physicians.
My RSD started immediately after I had laparoscopic knee surgery. I felt nerve pain right behind my knee in the soft tissue. I even asked my orthopedist 2 days after if they could have possibly nicked a nerve during surgery. After the nerve pain began to spread I had to concede that, that was not the case. During this same time my endocrinologist sent me to see a rheumatologist because she suspected I might have another autoimmune disease based on different symptoms I was having, completely aside from the RSD. Within two weeks it was confirmed that I have Sjogren's Syndrome, Psoriatic Arthritis and Ankylosing Spondylitis, all three autoimmune.
As far as my RSD goes, I have tried so many treatments and so many medications but, on the horizon I may have some hope. I am scheduled for surgery on April 11th to have a Dorsal Column Stimulator implanted that, with any luck, will work to interrupt the nerve pain signals and make the pain more tolerable.
I wish you all the very best in your quest for pain relief and am so very sorry you suffer so badly. I pray for better days ahead as more doctors become aware of RSD and newer and better treatments are discovered.
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