... about a minute? Ice is our enemy!! it makes our nerves go crazy!! I am so mad I thought she would talk about the pain more and yes eating good and vitamins are good but they do not cure us or put it into remission. Dose she really have rsd?? I am so mad I have been waiting years for her to talk about it and that's all she has to say!! There are more people suffering from RSD than Breast Cancer, HIV/AIDS, ans Multiple Sclerosis. Up to 6 million people have RSD and there is no talk, cure or anything!! Dr's look at you blank, nurse's say I have been a nurse for 20 years and never heard of it!! What is wrong with this picture?? There is no money in it.
I stopped listening to anything dr oz said after he had the lunatic on who wanted to say nutrition will cure fibro. No talk of what we go through, just what we eat. All he ever wants to talk about is eating weird things, and cancer. His wife must put him out to graze, with his fondness for eating grass, seeds and herbs.
Yeah- Paula Abdul is a good spokesperson for RSD. I wasn't happy when the RSD society made her spokesperson-I much preferred Ambassador Kilpatrick. I wear a flash drive dogtag that says I have RSD. I'm lucky, I have a primary care physician that's up on RSD and IBS. Mine is in remission-but's it's only by God's grace or something magical- My fingers were black or turning black, along with most of my hand. 3 fingers flopped uselessly. I wanted them to be cut off. Nerve blocks worked for me. I always have a nugget of pain at the injury site. It can be set off. RSD went a long way in destroying my marriage, and I don't fool around, as I'm scared that intimacy will set it off again. Driving a long way after swimming has set it off, where I was back in a pain clinic. About food-they keep changing there medical minds about foods. What's good one decade is a killer in another decade, and vice versa.
I just eat what I want-it's all about $$ and fame. Getting money to support research-Look at chocolate-it's now good for you-who funded the research-Hersey and Godiva? I've seen everything from grapefruit 4X a day to what we have-Once it was watermelon sandwiches that cured all. Coffee is good-coffee causes cancer- coffee is good- I just eat what makes my tummy feel good- and am waiting for mayo is essential-I hate imayo-I'm being sarcastic about diet research.
While I didn't see that show, I have a strong opinion about Paula Abdul that I expressed.
Seriously, did they say to use ice for RSD? I love cold icy weather, but with the thichest jacket and heavy gloves, the cold cut into my hand and the site that holds my demons of pain. One side ok-the other side on fire.
I think some TV doctors are just for entertainment and I can learn more from Judge Judy. LOL. Considering lots of people and doctors don't know about RSD, I'm surprised that we get as much care as we do. Also what makes one person happy doesn't work at all for others. Mine is from a breast biopsy. Now to get into my hot steamy bathtub and soak for 20-30 minutes. My family complains that I spend most of my time there.
I just read this information so I hope you all don't mind me throwing it out there. I did see that particular episode of Dr. OZ and it was kind of... lacking a bit... just disappointing and she didn't say much of anything useful.
"What is the treatment for reflex sympathetic dystrophy (RSD)?
Response to treatment of RSD is greater in the earlier stages of the condition than in the later stages.
Cool, moist applications to the affected areas can provide some relief of burning symptoms.
Gradual exercise can help prevent contractures.
Medications for pain and inflammation can also reduce symptoms.
For persisting symptoms, high doses of prednisone (cortisone) may be used for periods of weeks, depending on the response, and then gradually reduced.
Other medications that may be of benefit include amitriptyline (Elavil, Endep), pregabalin (Lyrica), and clonidine (Catapres, Catapres=TTS, Jenloga).
Occasionally, a nerve block with anesthetic injected into a specialized area of the involuntary nervous system (for example, a stellate ganglion blockade) can help both in treatment and in establishing the diagnosis. Sometimes a series of these blocks is tried.
Other treatments include surgically interrupting the nerves (the sympathetic nerves) of the involuntary nervous system (surgical sympathectomy), implanting pumps with pain medication into the spinal canal (intrathecal drug pumps), and spinal cord stimulation devices."
I was also looking for things that aggravate the condition... still looking.
Thank you all for you input, I really appreciate you taking time.
I have had a port placed and that was invasive for RSD and am considering the pain pump being my RSD can not get worse, I have it everywhere and in everywhere. I think it will be a while before I get it though, the trial is first. Any experiences with this would be appreciated as all the people in my pain group love it!
Thank you all!
I'm not going to defend the TV show at all, however Dr. Oz's books are really informative for people to get a general idea of how the bodily systems work together as a jumping off point for further study. TV is about ratings, money, etc. I wouldn't throw the baby out with the bathwater with Dr. Oz 'cause he is one doctor that actually looks at the body at one wholistic entity instead of each specialty being completely separate from all the others, just sayin'
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