was just diagnose with CRPS/2 with nerve damage. on Gabapentin now taking 900mg 3X daily. My pain dr. just put me on Nucynta ER 50mg 2Xdaily, was on tramadol 50mg every 6 hrs for the pain. Don't now weather to try neurostimulation or not. any advice out there?
Reflex Sympathetic Dystrophy Syndrome - Has anyone try Neurostimulation for CRPS/RSD ?
- 17 Jan 2014 by tj_1159
- 1 January 2018
- pain, reflex sympathetic dystrophy syndrome, neuralgia, gabapentin, tramadol, chronic pain, nucynta, nerves, nerve, nucynta er, syndrome, diagnosis
The trial for the implant is pretty uncomplicated. It is done in a surgi-suite setting. The rep for Boston Scientific has been through all of this with me and is my go-to person for any questions regarding how the unit works or reprogramming the remote control for better pain coverage. The implant was done in a hospital, out-patient setting. The battery was placed in my buttocks so you are recovering from that surgery, too. The leads for the implant are permanently anchored to your spine. I haven't had any issues with its operation. You do have to recharge that battery. Mine is done with a belt I wear with a pouch that fits the charger in it. When the pouch and charger are placed directly over battery, the beeping stops and the charging begins. That is the only draw back because in the beginning... that area in your buttocks is pretty darn swollen and wearing that belt with the charger was a bit rough. The charger couldn't always locate the battery to begin the charging.
Once all that swelling went down - no more issues.
I do still take pain killers and also use a Fent patch. NOW, I know where any pain is coming from... that makes treating that a lot easier and the pain I do still have is of a far less frustrating situation to me. I am able to stand on my feet at work for up to 10 hours at a time sometimes. I am glad to have some semblance of a life back.
Let me know how I can be of support or assistance to you... I am only too happy to help. : )
I don't have RSD but I do have a Spinal Cord Stimulator from Boston Scientific for nerve pain in my legs. Boston Scientific has a support group you can check out at raceagainstpain.com. Most people get to do a trial before it's implanted so you would know if it helps you. Worth a try! -EJ23
If people want to sell you on an operation to place a spinal cord stimulator be careful as the literature about it is not good. Now TENS units are a different story they help me tremendously. Also think of a Thermosphore heating pad for the painful area the guarding reflex causes with RSDS. Also ganglion stellate blocks worked for me initially and for awhile I got complete relief from the burning pain. But without the recommended PT, that my insurance carrier wouldn't approve, I ended-up with a left arm immobile and contracted. So be careful!
DEFINITELY TRY THE STIMULATION.
EACH YEAR THE STIMULATORS GET BETTER AND BETTER. My first stimulator was in planted in May 1996.
There's different stimulator companies...
I have had Metronics. Then the company I've had the longest is... St.JUDE Spinal Chord Stimulators. Their company changed names again... The company is now called ABBOTT . You can check on line about the different types of SCS... Also talk with your doctor about which company he is comfortable with.
The SCS have helped a big deal. It will not eliminate the pain... but it will reduce the pain and you'll be able to reduce the pain meds.
Your welcomed to ask me more questions after you talk with your doctor... ok?
I've had RSD since 13JAN94. My first stimulator was implanted May 1996.
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