... Recommended one but I'm terrified of this device
I have had spinal cord stim 2x implanted I have not had success because the 1st time stim was too intense for RSD pain n the 2nd time it did nothing at all I'm bummed because the surgery they are recommending is so dangerous be very careful and always do the trial and give it enough time.
I have not had onis procedure because I'm like you.
If the success rate was higher I'd go for it.
I was at a point that I told the neurosurgeon that if he could guarantee that I'd get pain relief, I'd agree to be paralyzed. Of course, no guarantees. I'd be paralyzed and still have pain. No thank you !
I guess you just have to weigh the pros and cons and be ready to accept the results. One of the worst things , I think, in life is to have to live with regrets about anything I've done or said.
It was good you got someone's personal experience.
I feel that the longer I hold off, the greater the possibilities of refining the procedure or coming up with another type of cure.
I have one. At first I could feel it, but St Jude Medical has burst technology that you don’t feel the stimulation. It only gives me about 15% relief, not much. I am getting ready to try a new one called dorsal root ganglia therapy, also by St Jude Medical. Success for this has been much higher. Hope to do trial in January 2018. SCS lead wires lay on spinal cord near where the nerves break off for the effected area. Dorsal Root Ganglia Therapy, the lead wires go along your spinal cord and then out on the nerve where it comes of the spine (dorsal root) for effected area. Even though I ended up with infection in my back after scs surgery looking forward to trying this new one. Any relief is good. I don’t expect to ever be pain free. I think death is the only way, and pain is better than death even on the days my pain is at a 9/10, which has been a lot lately.
I have RSD/ With Spread thru out my body for 13 years. Subsequently I developed intercystial cystitis. A SCS was inplanted after a very sucessful trial to stimulate my bladder to empty. The inplanted devices lead was incorrectly placed and when activated the sacrul nerve was damaged, and I have more pain.
I believe that you have very good reason to be cautious, and make sure person who does the surgery is certied by manufacturer of SCS to perform the surgical inplantation.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 17 Jan 2012 • 3 answers
Reflex Sympathetic Dystrophy Syndrome - Did anyone see Dr OZ with Paula Abdul talking about RDS for?
Posted 24 May 2012 • 8 answers
Posted 16 Nov 2012 • 2 answers
Posted 9 Jan 2014 • 2 answers
Reflex Sympathetic Dystrophy Syndrome - I have had rsd four times or what you could call flare up's?
Posted 31 Oct 2015 • 1 answer