It was noticed at a very young age that I was very hard to put to sleep and keep asleep during surgery. I have started to wake up numerous times. It was explained to me that the receptors in my brain reaponsible for recognizing narcotics did not respond normally. This has brought great hardship on me all my life. Then the addition of narcotics for 45 kidney stones, football and car injuries, farm work and a profession that was physically demanding has wrecked my body. Plus in the last five years I have been diagnosed with RA and OA arthritis. On average it takes approximately 2X the normal dose of pain meds to get my pain level down to maybe a 2 or 3 (based on 1 to 10, 10 being the worst pain) and it seems to me that I'm damned if I do and damned if I don't tell a pain specialist. Some of the specialist get absolutely rude if I tell them that a med or strength of a med isn't working. Also it seems to me after about 2 yrs they stop listening anyway. My pain is constant 24-7, and I wish that a Bayer asprin would do the job for me. I am so fustrated that I am literally at my wits end. I do not know what to do. And lastly these so called 12 hour extended pain relief meds are a farce. I've never had one last that long maybe 6 hours if I don't do much physically but I have to. I have a 92 year old dad to take care of and a 73 yr old sister who also needs my help. And the kind of help they need is physically demanding, which means that I have to take more meds which means I run out before the month is out, I would like to scream. I've been diagnosed as severely depressed due to the constant pain the juggling of the pain meds and thinking that the Dr.'s think I'm an addict. I know I'm venting but I really don't like talking to my family about my problems. So I'm sending this out into the void praying for answers.
Not sure what all is wrong with your body, but there are other means of pain control besides the narcotics. For the RA and OA there are medications such as non steroidal anti inflammatories or even stronger meds like Plaquenil. You may also want to talk to the doctor about medications for neuropathy such as Lyrica. If you approach the doctors with the notion of non narcotic solutions such as these they may respond to you differently. Another idea that comes to mind is the antidepressant Cymbalta which also helps with nerve pain. Worth asking the doc about.
resrasss, welcome to the site first of all, & please stay with us for support if nothing else. There are wonderful people on here of all kinds as you will see. I understand your pain concerns as I too suffer from amny bone diseases, & other problems that have put me into chrontic pain for over 44 years. I currently take 15mg of oxycodone & it helps me tremendously. Unfortunately, this past year or so the FDA & DEA have come down hard on the Pain Management clinics & docs, where they are afraid to proscribe anything but long acting pain meds. I had this problem with mine. If they don't prescibe the 4 to 6 hour meds, the restrictions on them are less, so in lies your problem. It sounds to me like you need to switch pain clinics. I had to do this a year ago, but went to my PCP because he knows me well enough that he knows the pain I suffer from.
He literally got on the phone & called & talked to several other pain clinics til he found the one I go to now, that handles my pain meds. This sounds like it may be what you will have to do. You know your own body better than anyone, & what works. Don't go in & demand a certain med, just tell them what you have tried, & what works best in your situation. Tell the whole story because they all know about the new rules. My old pain clinic almost killed me insisiting I take a long acting pain med (that was recalled 2 weeks later) that I was allergic too. My PCP had a fit when I said I called them, & they said it's that or nothing! I have been on pain meds since the early 90's. the new pain doc wanted to try just 2 vicodin a day. Yeah right! That didn't last long! I'm now on oxycodone 15mg after being on 150mg of methadone from the other clinic. UGH! I hated methadone, but it does help some people. I would fall asleep driving! I weaned down with the promise of going back to vicodin when they found out my so called liver problem (the reason for switching to methadone from vicodin) wasn't a problem & had been fixed surgically, but through all the pain I suffered weaning back down to just 10mg, then the laws changed & they wouldn't prescribe vicodin anymore. Just saying you do have options, just finding the right doctor. As Laurie pointed out there are other meds for pain too, like Lyrica, cymbalta, & gabepentin. I wish you the best, but be a hard ass about this. It's the only way you will come out ahead...
Hello. You are handling a lot of pressure. Stress and pain are not a good combination. It makes us hyper sensitive to the pain. Pretty soon it becomes this swirling vortex with no way out. and that is called depression. Depression goes hand in hand with long term pain. The pain drains you of energy, you have lost the ability to do the things you had loved. You are caught as a care giver and need a break yourself so you can be cared for.
I suggest that you take the anti depressant so you can help your mood. None of this is your fault, but it is all piled on top of you. You will feel less stressed and closer to your old self. Anyone in pain gets depressed, it is medical.
Perhaps it is time to get some assisted care in your home. or get family, if you got them, to help. Or look into a home for anyone needing constant care. I have been in nursing homes (old term) and at least the ones around here are pretty good as they took decent care of me when I was bed ridden.
The pain receptor thing and anesthetics. Runs in my family too. I always have a very frank discussion with the surgeon and the anesthesiologist right before the surgery and remind them. And I mean while I am in the prep room on the gurney where they do their last talk with you. I did not wake up the last time.
Wishing you wellnes. Vent away. It is the best therapy when you have no where to turn. Let us know how you are doing. Love your strength for reaching out.
Welcome rexrasss, and you are in the right place with a lot of knowledgeable
people here to help you!! Now here is my knowledge ! Who explained to you
that your opiod receptors did not respond normally? I would think that it was an anesthesiologist since you say that you were hard to keep asleep. GET THOSE RECORDS! If the records do not exist anymore, find the doctor who enlightened you on this matter. Surely someone other than you know this, or possibly you have your old medical records that state this. This might be your key to getting more help than you are getting now.
regarding your personal situation, don't be embarrassed about that. We all have our situations, and it seems that you are in the 'sandwich' generation, taking care of elderly parents, and at the same time, having to take care of children, siblings, or even yourself. This alone causes depression and stress, and both of those cause MORE PAIN. there is a high correlation between pain and depression and stress, thus taking the right antidepressant can really help you out, especially since many of the newer ones help with chronic pain. You also might be helped by a small dose of benzodiazapines such as Xanax, or Clonapin, to help with the anxiety that chronic pain and responsibilities that are brought on you through no choice of your own.
RA has medications that are not narcotics which are extremely helpful for pain. I believe the name of one is methaltrexate, but don't quote me on that. I would STRONGLY urge you to see a rheumatologist, as they are very compassionate to people in chronic pain in their areas. Perhaps you also have fibromyalgia,and don't know it. Rheumatologists are also experts (most of them at least) in that area also. There are many other meds that can control pain besides the narcotics for those problems such as Lyrica, Cymbalta, and a few more. Again, these are meds that bypass the opiod receptors.
Finally, YOU NEED HELP! You cannot continue to take care of your father and your sister alone. I don't know if you have other family members who can help, but I do know that hospice has changed it's rules and helps anyone with a life altering condition, and with a 92 YO dad, that is life altering! I'm not sure what is wrong with your sister, but she needs to help herself also. I also would call the united way in your area. that is the biggest non profit group who run so many free programs, or on a sliding scale fee, that cover a vast amount of situations.
Good luck with everything, and I really hope that our group can at least give you a place to vent, with a few ideas that just might work!!
hi rexasss. i would like to say that i understand totally what your talking about. i just joined because i was doing research on the same medical condition where the pain receptors basically block any and all attempts to relieve pain and saw your post and thought i would like to respond to let you know your not the only one. both me and my mother suffer from this problem. and even though im only 20, i have arthritis and many other health problems that make it hard to live my life the way normal teens and young adults live. my mother has woken up in the middle of heart surgery. so we both understand what your going through. and i will definitely be praying for you. if anyone can find something that can for sure help out with these pains and my chronic migraines that we cant find a cure for, that would be greatly appreciated.
love and best wishes. me. :)
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