well my 10 year old daughter was sick for 1 year and back and forth from the doctors in and out of state. The 22nd the doctors told me by just looking at her she has LS better known as Lichen Sclerosus, that was it but told me to look it up and nothing else, didn't tell me what it was, or anything about it. So I'm asking if anyone know or want to help me. but i know this her white cells are usually high. and always getting what we thought was UTI's she is really sore and red down there. she had to get her gaul bladder taken out because of the scar tissue around it.
Hi Dawn 2001... so sorry to hear about your daughter. Lichen Sclerosus is a skin disease that occurs most often on the vulva. The cause is unknown. However, many physicians believe that it occurs when the immune system, that part of your body that fights off infection, becomes overactive and attacks the skin. LS usually causes itching, and in later stages, easy bruising, tearing, and pain. Skin affected by LS is usually white, and sometimes there is a fine, crinkled texture. If untreated, LS often causes scarring, and the opening of the vagina can narrow. LS does not affect other skin, but about one woman in ten has a few scattered white spots in other areas. Like myself I not only have LS on the vulva but on my upper body as well.
There is a very high potent cortisone ointment that is used to treat the vulva that will stop the icthing and turn the vulva back to its original color.
I want to encourage you to find your daughter a doctor who is educated on vulva disease. Just because the doctor told you it looked like LS he could be wrong. It is always best to find a doctor who can perform a biopsy on the vulva site to be sure thats what her condition is. You didn't say if your daughter had itching or not. That was the number one symptom I had before they found out LS was what I have.
Like your daughter a doctor looked at me and said that it looks like LS to him but he did two biopsy to make sure.
The doctor your daughter saw should have sent her to a doctor who can test her to see if LS is what she has. LS does happen in children somtimes too from what I have studied about it. But I do know for sure that LS cannot go left untreated! There is a slight increase in vulva cancer if it is not treated.
Finding a doctor who is well educated on vulva diseases was a very hard struggle for me but I finally have found one who I will be going to see in March. I have heard so many wonderful things about her!
I am so sorry to hear about the other health issues your daughter is having too. I have had LS since 2007 and just found out in 2011 that is what I have. It can and will get worse unless it is treated. Find your daughter a doctor who is educated on skin diseases. Try a dermatologist and if she has LS they will take good care of her!
Best wishes to you and your daughter and I hope this helped alittle. Just to say it was my dermatologist who referred my to this wonderful doctor I'm going to in March. Have a bless day!
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