... months be ?Physically how will I feel and how will I go. sudden. slow.. aware of end .or pass out. will I suffer? I have spells sometime for days unable to make it across room without panting, near passing out. My doctor said NOT to pass out because I may not wake up.
What a dumb thing for your dr to say. How are you supposed to stop it if you're going to pass out? Generally its a slow process, you will be able to do less as time goes on. As far as suffering, you're dr can prevent that. Talk to your dr about hospice, its their job to help you in any way you need.
When my wife was diagnosed they said not to think of how much time she has left. But to enjoy life to the fullest. Yes you will get tired , but get on the right medications can help a lot. My wife was told she had outlived her time. Since she started remodulin she fells better on some days. We do as much as she can tolerate. She is on 7 liters of oxygen 24/7. I hope you have good support.
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