I have been Dx with POTS and given low dose propranolol (10 mg 3x day). I have low bp also and im nervous it will go lower and be dangerous. My doc says we "need to be careful" which isn't very comforting. Anyone taking propranolol and also suffer low bp ( 98/60-104/70 ish )
I also have low BP and POTS, along with a mutation on my Fabry gene, indicating a lysosomal storage disease. My doctor at Mayo believes this is behind all of my symptoms... fainting, lack of balance, brain fog, digestion issues, BP and HR especially. I've found that keeping tabs on my orthostatic blood pressure/HR helps me know when I need a lowkey day. My BP/HR is usually:
Lying: 105/90 BP & 58 HR (I have a pacer for bradycardia)
Sitting: 95/80 BP & 52 HR
Standing: If I'm having a tough day or possibly dehydrated - low 70s/60 and a jump of over 30 points on my HR, commonly 125 or so.
Makes you feel yucky, but if you journal your pressures and how you're feeling that day, it can help your doctor figure out what's going on. My doctor wouldn't put me on Propranolol, but pushes compression hose, salt, and fluids - especially Pedialyte or Gatorade/Powerade to help with dehydration and electrolytes. Have you asked about Midodrine, Florinef, or the newly FDA-approved Northera? I think Northera will be taking the place of Midodrine soon.
- Propranolol Information for Consumers
- Propranolol Information for Healthcare Professionals (includes dosage details)
- Side Effects of Propranolol (detailed)
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