Have been on Prednisone for 1 1/2 years for PMR, a painful autoimmune disease. My recent bone scan showed severe osteoporosis with T scores as low as -4.7 and -3.3 in my spine and hip. I am 63 and I don't dare not to take Prolia. I found a few programs online with natural supplements with Strontium which I have been taking for 2 months. Everything I read about severe osteoporosis is frightening especially when my doctors insist that I should take the prolia . Side effects of Prolia indicate pain in muscles and joints which is the same symptoms of PMR so I am worried I may be more susceptible to Prolia's side effects.
The side effects can sound scary but they are still usually not what happens to most people. If you do have side effects then contact your doctor right away as they can change your dosage or your medication completely to find the right one for you. If your doctor acts or is unwilling then seeks second opinion. Prolia's own website states muscle pain (amongst several others) as the most commonly reported side effects.
Remember though it doesn't mean most people taking it had that problem, nor will you necessarily, just it was most reported.
Your prescribing doctor for Prolia (if not the same) should be aware of your condition and all current medications.
There is another question from someone who has RA whose question is “Is there anything to clean prolia out of your body? It is about to kill me... ” One of the answers says, “Everything that I have read seems to indicate that someone with RA should not have this shot.” Type on "Questions" above and type Prolia.
I have had significant side effects causing me pain for over 4 years after getting just one injection and the side effects were not listed as side effects from Prolia. Many people have also had significant painful conditions after getting Prolia, sometimes not until the first or the 4th injection. These many stories you can find by clicking on “Questions” above, then try typing Prolia and see if it comes up with the question “Anyone tried Prolia for osteoporosis? If so, did you have any side effects from it?” Or try just clicking which is “Anyone tried”, then it might come up, If you type out the whole question, it’s harder to find, at least when I try.
Another question to look for is “Anyone with prolonged effects from Prolia? Mine are bad?”
Most people will not have reactions, but it is a highly risky shot to get.
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