I was just wondering if I should go to to Neurologist for this pain as I have been to a few other Dr's Pain Management included and so far nothing anyone has done has helped me in the least bit.. they really arent 100% it is from shingles just a guess since I did have a couple blisters on my chest around the time the burning in my chest started.. Ive been on every anti seizure drug, anti depressants, had intercostal nerve blocks and radio frequency ablation where they burn the nerve and Im getting worse everyday.. even sent me to Physical Therapy as I am so tense from the pain and favoring the left side has made me worse and he mentioned goin to a neurologist.. shine
Hi Shine,Still no relief huh? I hate to have to say this but,I've had Postherpetic Neuralgia fo almost 5 years now and have tried everything I could and there just isn't any cure for it. You do need some narcotic pain meds if the pain is unbearable,there isn't anything else they can/will do.There is absolutely no reason for you to be in such pain,if your doctor won't give you something..find a new one ! Going to a neurologist was a waste of time for me, all he wanted to do was keep me trying differents meds and then have me come back to see him, maybe you can find one that will try to help you but, if he's truthful,he will tell you there is not a cure. Sorry you have not received any help,you need pain control because the pain is controlling you!
Has your pain specialist mentioned a Spinal Cord Stimulator. It's an implanted device - similar to a pacemaker - along your spine that causes a tingling that helps a lot! with nerve pain. Ask about it - you do a trial first before the surgery, so you will know if it helps or not. Hope you get relief soon! ElizaJane
I have been to neurologist as well. They didn't do anything except check to make sure i didn't have something wrong with my central nervous system etc. They did MRI and another test i forget what it was called. I had one dr. talk about a spinal cord stimulator and a few drs. suggested a TENS unit. has anyone used a TENS unit. I guess it would be worth a try before you go to the spinal cord stimulator route. Anyone have a pain pump installed? I am leaning towards these alternative methods.
I have been following what's going on with you for some time. Am so sorry to hear that you are having even more pain. If they are not certain that it's really shingles, then I would think that you should see a neurologist. And if you are getting worse everyday from the radio frequency ablation, maybe you should not continue with it. My mother's boyfriend has tried I believe everything and nothing has helped him, but then he got it in his 80s and is now 96. Age is a major problem with post herpetic pain from shingles.
But one thing that didn't work for him, but may work for you, is marijuana. It does help some people with pain. My mother's friend was given some medication (like marijuana) before it was legal in his state for medical reasons. If you can't get the medication, don't smoke it, as it causes extreme lung damage. You'll need to bake it in something like brownies after you've picked out the seeds. But only take a very small amount, then wait at least 45 minutes, so that you don't overdose as I did and nearly had to go to the ER.
So very sad about your pain. It must be so hard on you. I have had terrible pain with my 24/7 migraine pain, but nothing compared to what I understand shingles pain is like. Just wishing you any relief. Sara
So sorry you're in such pain. Please without further delay, find the BEST --an excellent internist/diagnostician, with a good bedside manner. Even if just for a consultation. Let him/her guide you as to tests, medications, specialists.
Went to the neurologist, he prescribed a topical cream that they make in Tallahassee Fl and it was delivered to my house, its made of several different medications, it has tramadol, a anti-convulsant, lidocaine, etc it has like 5 different meds in it, you have to rub it in for four minutes 4 times a day, so far it hasnt done much but ive only used it 3 times so far, it does numb the skin but my pain is deeper then that, I think its helping a little bit, it is very expensive even with insurance I had to pay 70 bucks so it better do something, also got some hydrocodone and that is helping decrease my pain by about 30 to 40 %.. so Im still in pain but nowhere as severe as it was..shine
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